When to tell?

My 9 year old daughter has been on the camhs waiting list for ASD diagnosis since Summer 2020. Her teacher flagged up that she may be ASD in Year 1 and the school have historically been great in adapting to meet her needs. 

However, we are noticing her beginning to struggle more as time goes on (especially socially) and I fear that she is learning to mask her ASD traits and internally suffering to a high degree (She'll often have unexplained meltdowns at home where she can't explain what's happened or upsetting her)

We haven't yet talked to her about the possibility of her being autistic. She suffers on and off with anxiety and we felt she was very young at the start, didn't want her to think there was something is wrong with her. But now she is getting older she is noticing differences herself and I fear she'll reach the conclusion there's something wrong with her (which is obviously not the case, she's a gem!) 

What age did people tell children they were possibly ASD? Should I wait until we receive a diagnosis? 

Parents
  • Like Ann, I was diagnosed as an adult (37) and would have liked to have known earlier. Teenage years were very hard for me as the type of socialising I was expected to do moved from play, which I could do, to just "hanging out" and speaking with other teenagers, which I found incredibly difficult and scary and largely avoided. I think it might well be worth bringing it up with her, especially if she has her assessment soon (hopefully!). I think it would be better to do it at an appropriate time of your choosing rather than waiting until something happens and you have to tell her immediately.

  • This exactly! She's already struggling with the change in play style this year. Lots of pre-teen drama and angst amongst the girls that she's confused and scared by and she just runs away! So I think increasingly she's been by herself at playtime. Thanks for your advice, makes a lot of sense!

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