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25 year old Son in supported living.

Renrew

We have a 25 year old son who has been living in a supported shared living setting for three years. After a long battle with the LA following the emergence of challenging behaviour he has just bee moved into a single person flat in the same home with a much higher level of support. Our son says he misses his family and asks to return home when we visit him and wants to stay with us when he visits us. He suffers with raised anxiety levels and has had meltdowns in the past although these have become less frequent. 

We would be interested to hear of the experience of other parents and carers. 

Parents

  • Hi - my son's in his 20s and in supported living.  He had a difficult time for months with his previous care provider.  We eventually managed (long story) to get approval for a change in provider.  We chose an autism-specific one with a vg reputation.  However, he was still in the same tenancy as he'd always been in.  The autism-specific care provider said clearly they felt that tenancy wasn't suitable.  There were a number of reasons.  He then eventually moved into appropriate accommodation with his autism care providers. Since then things have become much clearer about what his triggers are and how to manage them.  So.....I'd ask yourselves :  how good a care provider has he got?  Do they really understand about autism and how it affects him personally?  What have they sd about his challenging behaviour?  How long has the challenging behaviour been going on?  Could it be to do with his placement, even tho his care package has been enhanced.  There are a number of care providers who say they provide autism specific care.  Can I say, thru experience, that they vary greatly.  As he's now in his flat, that should help him as things will be less chaotic.  Does he have 24 hr care?  Sorry for all the questions but posters can only respond from the original post.  Has he been able to explain why he wants to come home?  It sounds like he isn't settled, despite getting a different package.  If it were me, bearing in mind I don't know enough about the circumstances, I'd firstly look at his care package in respect of his care workers, the hours he gets, how others may interact with him despite him having his flat.  Take it from there (smileys not working yet again!)

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  • Hi - my son's in his 20s and in supported living.  He had a difficult time for months with his previous care provider.  We eventually managed (long story) to get approval for a change in provider.  We chose an autism-specific one with a vg reputation.  However, he was still in the same tenancy as he'd always been in.  The autism-specific care provider said clearly they felt that tenancy wasn't suitable.  There were a number of reasons.  He then eventually moved into appropriate accommodation with his autism care providers. Since then things have become much clearer about what his triggers are and how to manage them.  So.....I'd ask yourselves :  how good a care provider has he got?  Do they really understand about autism and how it affects him personally?  What have they sd about his challenging behaviour?  How long has the challenging behaviour been going on?  Could it be to do with his placement, even tho his care package has been enhanced.  There are a number of care providers who say they provide autism specific care.  Can I say, thru experience, that they vary greatly.  As he's now in his flat, that should help him as things will be less chaotic.  Does he have 24 hr care?  Sorry for all the questions but posters can only respond from the original post.  Has he been able to explain why he wants to come home?  It sounds like he isn't settled, despite getting a different package.  If it were me, bearing in mind I don't know enough about the circumstances, I'd firstly look at his care package in respect of his care workers, the hours he gets, how others may interact with him despite him having his flat.  Take it from there (smileys not working yet again!)

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