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Daughter struggling at school

NAS85182

Hello, I have an academically smart  daughter who was diagnosed with  ASD in primary school in KS1. She has now begun high school and we are struggling tremendously. She has never had an EHCP because she functions well at school except for the sensory and social aspects. She has struggled greatly with the sensory aspects of school since starting high school. It's particularly loud for her. She is unable to perform well in the lessons due to the commotion and the manner in which they are taught in comparison to primary school.

She doesn't drink at school since the bathrooms are locked and she is afraid to use them. She also does not eat at school, which certainly does not help her mood. She refuses to attend school on Wednesdays and appears gloomy and disconnected from everyone  since beginning at this school I assume she's very over stimulated . The school can't put anything in place, they say, because she's academically able to function , so all they provided her was a seat at the back of the class and that she can wear her ear defenders during the movement of lessons , which baffles me. Apparently, even though she has a diagnosis, she requires an EHCP to put more things in place. My daughter was likewise diagnosed with ADHD six months ago as our doctor was concerned this was over looked when she was diagnosed with ASD in her early years . 

The school agrees that she needs more, but they can't do anything without the EHCP. Could someone please help? Can anything be done without this legally binding document? Isn't the fact that my daughter has an official diagnosis of Asd and ADHD enough for the school to put everything in place? Is there not a law that they should obey if your child has special needs?

Parents
  • NAS85182 said:
    She doesn't drink at school since the bathrooms are locked and she is afraid to use them

    This is a health and safety issue I would bring up with your GP. This can cause all kinds of serious problems including kidney problems. I would not allow my child to go to a school where they couldn't relieve themselves when they needed to without embarrassment, especially considering how many Health Issues Autistics actually have. I would raise this in the community and take it to a solicitor if need be. 

    However I can be understanding with how stretched schools are with resources and teachers are with their workload and demands. But schools are poorly built, not acoustically treated, some without proper ventilation. Children who are not dulling their senses like their peers can be overloaded from Volatile Organic Compounds from perfumes and cleaning agents, and anything off-gassing in the building, from reverberations and piercing frequencies, from flickering and unnatural lighting (LEDs / fluorescents - see lightware.org) and from petroleum based fibres which their uniforms are typically made from, micro-threads of plastic, which if caught in a fire would just melt on to the skin. 

    I want to be specific about safety because this is the most important. I might see if a teasonable adjustment can be made for her to learn and do her work at home if she's willing to be disciplined with it, and then perhaps for her to check in at reasonable intervals (even if once per week).

Reply
  • NAS85182 said:
    She doesn't drink at school since the bathrooms are locked and she is afraid to use them

    This is a health and safety issue I would bring up with your GP. This can cause all kinds of serious problems including kidney problems. I would not allow my child to go to a school where they couldn't relieve themselves when they needed to without embarrassment, especially considering how many Health Issues Autistics actually have. I would raise this in the community and take it to a solicitor if need be. 

    However I can be understanding with how stretched schools are with resources and teachers are with their workload and demands. But schools are poorly built, not acoustically treated, some without proper ventilation. Children who are not dulling their senses like their peers can be overloaded from Volatile Organic Compounds from perfumes and cleaning agents, and anything off-gassing in the building, from reverberations and piercing frequencies, from flickering and unnatural lighting (LEDs / fluorescents - see lightware.org) and from petroleum based fibres which their uniforms are typically made from, micro-threads of plastic, which if caught in a fire would just melt on to the skin. 

    I want to be specific about safety because this is the most important. I might see if a teasonable adjustment can be made for her to learn and do her work at home if she's willing to be disciplined with it, and then perhaps for her to check in at reasonable intervals (even if once per week).

Children
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