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Asd waiting list

NAS77435

Hi,

We’re currently waiting for an assessment on my 12yo and just started the referral process again for my 10yo. Anyone know a realistic time scale for assessment? I’ve read that it should be no longer than 6 months (which is absolute bull!) we’ve been waiting a year for second referral for 12yo (first assessment was when they were 3yo and was told they have tendencies but not enough to diagnose). 
They both mask outside of home so really hard to get support from school. I feel I’m trapped in my house, being controlled by kids. Im constantly walking on egg shells not wanting to set off a meltdown if they don’t get their own way or something is out of place and routine. 
Not sure where to go for support as the groups I’ve found in my area are all family’s with diagnosis and I feel like a fake wanting the support but not having the diagnosis 

Parents

  • I understand your frustration and feeling like you need the diagnosis. Family and friends have told me a few times that my son is fine etc but I need a professional to tell me they see what I see!

    The wait times are a disgrace to the uk, when early intervention is key for these children’s quality of life it seems absurd that support is so hard to come by and wait times are so long. I have been told 2 years for my 20 month old. 

    what am I to expect in the assessment does anyone know? Should I be gathering video evidence and such?

Reply

  • I understand your frustration and feeling like you need the diagnosis. Family and friends have told me a few times that my son is fine etc but I need a professional to tell me they see what I see!

    The wait times are a disgrace to the uk, when early intervention is key for these children’s quality of life it seems absurd that support is so hard to come by and wait times are so long. I have been told 2 years for my 20 month old. 

    what am I to expect in the assessment does anyone know? Should I be gathering video evidence and such?

Children