Diagnosis Private or NHS.

My sons 12 and we’ve just been told he’s got autistic tendencies and my sister just been diagnosed at 40. I’ve put him on the waiting list to be diagnosed by NHS. However someone said to go private. I’ve thought of it (we paid private for sons dyslexic test) but I’ve heard the private test is worthless as not everyone recognises it.. IS this the case and how much does a private test coat? 

Parents
  • Hi, I was diagnosed privately as I was moving countries too much to ever make it to the end of the waiting list. My diagnosis is fully recognised by the NHS. I think like Martin has pointed out it depends on who does the private diagnosis. I was diagnosed via Sara Heath- She does a prediagnostic assessment and if she thinks you are autistic, you can see a consultant psychiatrist who also works for NHS and has done NHS autism assessments. He will then do an assessment using Sara’s report as a basis. https://www.shropshireautonomy.co.uk/autonomyplus/pre-diagnostic
    I had a good experience and it was recognised by my GP.

  • I'm 69 and i think it's only the last 15yrs that i started to think i was autistic. I read about lhe long waits on the Nhs, and the fairly high cost of going private. I've only recently got a new Gp, and he's the first person to take any interest.  He asked would i like to go the waiting, but i said...... was it worth it at my age, i could probably be able to afford a private assessment, but ........ was it worth it at my age. If only i got was a piece of paper telling me what i already know.  It's not even as if i could go into the Dhss and say to them, will you add an extra £10pw to my pension, 'cos i'm autistic.

Reply
  • I'm 69 and i think it's only the last 15yrs that i started to think i was autistic. I read about lhe long waits on the Nhs, and the fairly high cost of going private. I've only recently got a new Gp, and he's the first person to take any interest.  He asked would i like to go the waiting, but i said...... was it worth it at my age, i could probably be able to afford a private assessment, but ........ was it worth it at my age. If only i got was a piece of paper telling me what i already know.  It's not even as if i could go into the Dhss and say to them, will you add an extra £10pw to my pension, 'cos i'm autistic.

Children
  • For me it was really important to know and have external validation that I am indeed autistic... in part as I had been diagnosed with lots of other things that didn't really seem to fit and I was/am struggling. It really helped me to understand myself better and to be more accepting. I also thought it might be useful if I ever ran into issues at work. 

    But I can understand that a diagnosis is not right for everyone and it really depends on the circumstances and what you want- When I realised that I was autistic, my mum and I realised that she is most probably also autistic- but she has no interest at all in getting a diagnosis. Her take on it was 'well, I've always known that I am different/an alien. It doesn't matter to me what it is called' . She's accepted herself the way she is, has finally found a job that she is comfortable in (self employed and working from home) so for her there is no need...