Not sure if I am doing the right thing

Hi All,

My six year old daughter has no diagnosis but we are waiting for a paeds appt.

She has always had difficulty settling to sleep and still wakes in the night regularly after not going to sleep until 10-11pm, she does have a couple of days a week when she is asleep by 9 due to exhaustion.

She has complete meltdowns over things we would consider minor...ie: which side of the car to get in, whether we go through self service or a person at the checkout, which coloured card I use at the shops, which supermarket I go to, (she likes Tesco, I want to shop at Aldi), which pillow she has, how the seams on her clothes feel (clothes shopping is very difficult due to seams and appliques). Where she is dropped off or picked up at school.Who puts her to bed, she also lies a LOT and can keep the lie going on for days on end etc etc

We once had neighbours ask our landlord if she was ok and were we hurting her due to her screaming. She has become increasingly violent when having a meltdown and has started telling us she is a bad girl and I 'borned' her mean.

Her anxiety levels are quite high and it varies from day to day but tends to be about the same things (mentioned above). I had a spell of two weeks of not being able to get her to school; we had just moved house, the colour would drain from her face whenever we mentioned getting her there and she would then have an upset stomach. It was really awful seeing her so upset.

The school weren't much help at all so I took her to the Gp and contacted the school nurses. The Gp referred us to CYPS who have refused to see her until we have done the Webster Stratton parenting course and the school nurse has referred her to a paediatrican as she thinks it might be ASD.

She was early with all her milestones, we taught her baby sign, she was walking by ten months and has always been able to talk the back leg off a donkey. She can read but I can't read any of her writing and the school have started extra lessons for her literacy, but she can pinch my phone take photo's of things and then send them to my friends or famil or discuss the solar system with you. Smile

My new problem is that she is defacating in odd places,she has had her bowels open recently in the bath (not during a bath but has gone in the bath instead of the loo) and then today I have found she has gone in the drawer of a cabinet we have outside. It is covered in a million flies and she denies all knowledge, has explained in great detail how a dog must have climbed over our fence and detailed how it got out. (8ft fence mind you).

Also she seems obsessed with her own bottom and showing it to the world and my boobs and trying to touch them all the time. Telling her I don't like it and we all have parts of our bodies that we don't let people touch any time they want doesn't seem to be getting through.

Any tips on how to handle these two situations would be appreciated.

Thanks

A very tired Mrs J

Parents
  • Hi - welcome to the forums.  If your daughter is autistic and not yet diagnosed as such, then life in general but especially perhaps at school will be difficult for her.  Does she get any help at school - teaching assistant?  From a neuro-typical point of view her meltdowns appear trivial but they are anything but to her.  A meltdown is a serious matter for the person at the heart of it, brought on by tons of anxiety that daily life can create.  It'll help if you can avoid what triggers a meltdown.  I know this can be disruptive to daily life, but constant anxiety (hers + yours) + meltdowns are worse.  Has she got a daily routine she can rely on.  She sounds intelligent so I'm sure she'd enjoy family interest in what interests her.  Accept my apologies if I'm suggesting things you're already doing.  She sounds like she's got sensory issues with clothing.  What may be an irritation to us can feel much worse than that for an autistic person. She may have other sensory issues - have you noticed any : certain sounds, smells, lights, textures (inc food)?  If you think she's autistic + if you haven't done so already then check things out via the home pg + posts. Info is power.  I'm not at all sure what to say about the defecating.  Can you think of anything which might have triggered it off?  Have you thought about introducing a rewards system for using the toilet?  It cd also be used in the hope of preventing innapropriate touching.  Maybe showing her a picture of the female body wd satisfy her curiosity, as long as it didn't get obsessive  Many children, autistic or not, respond very well to rewards + the opposite with punishment.  I think autistic people react badly to punishment.  With my son, even raising my voice can really upset him.  He responds much better to a calm voice, calm body language etc.  Once again, if you're doing this then I apologise.  Good luck with everything

Reply
  • Hi - welcome to the forums.  If your daughter is autistic and not yet diagnosed as such, then life in general but especially perhaps at school will be difficult for her.  Does she get any help at school - teaching assistant?  From a neuro-typical point of view her meltdowns appear trivial but they are anything but to her.  A meltdown is a serious matter for the person at the heart of it, brought on by tons of anxiety that daily life can create.  It'll help if you can avoid what triggers a meltdown.  I know this can be disruptive to daily life, but constant anxiety (hers + yours) + meltdowns are worse.  Has she got a daily routine she can rely on.  She sounds intelligent so I'm sure she'd enjoy family interest in what interests her.  Accept my apologies if I'm suggesting things you're already doing.  She sounds like she's got sensory issues with clothing.  What may be an irritation to us can feel much worse than that for an autistic person. She may have other sensory issues - have you noticed any : certain sounds, smells, lights, textures (inc food)?  If you think she's autistic + if you haven't done so already then check things out via the home pg + posts. Info is power.  I'm not at all sure what to say about the defecating.  Can you think of anything which might have triggered it off?  Have you thought about introducing a rewards system for using the toilet?  It cd also be used in the hope of preventing innapropriate touching.  Maybe showing her a picture of the female body wd satisfy her curiosity, as long as it didn't get obsessive  Many children, autistic or not, respond very well to rewards + the opposite with punishment.  I think autistic people react badly to punishment.  With my son, even raising my voice can really upset him.  He responds much better to a calm voice, calm body language etc.  Once again, if you're doing this then I apologise.  Good luck with everything

Children
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