Social Services Support - I use the word "support" lightly!

Been having some very interesting chats with other parents of ASD children and some of their stories when approaching Social services for help. I always wait till Im at the end of my tether before I ask for help. Im a single parent of an autistic girl and in 12 yrs Ive asked for help 3 times and refused. What excuses has your local SS given you to deny you support? The best one for me so far is ...

"look, youre feeding your daughter strawberrys, youre coping just fine"

Foot in Mouth WARNING: NEVER FEED YOUR CHILD STRAWBERRIES IF YOU NEED HELP!

Parents
  • stranger said:

    [quote]I have been told by adult services that they have no expertise in Asperger's even though they try to tailor therapy to "individual needs" (yeah, um not quite sure how those two go together) so I cannot get support based on my neurological difference.[/quote]

    You may find (as some of us have) that you're too high functioning for learning disability support (IQ above 70) and mental health are no good for you because you don't actually have a mental illness.

    My "support worker" was useless and clearly didn't understand the issues I have. I've tried getting back in touch with social services; but they don't want to know.

    It wasn't therapy for Asperger's it was therapy for anxiety and PTSD.  Most of us do have co-morbid mental health issues, (in a study of children on the spectrum here http://www.ncbi.nlm.nih.gov/pubmed/20177765 it was 74%, during adulthood it most likely is higher due to trying to exist and fit in, in an NT society and how that makes us increasingly anxious and depressed over time).

    The point is, mental health services (MHS) are meant to support people with AS/HFA, that means not only for their mental health issues but coping with their AS/HFA (such as coping skills and techniques or whatever).  That support is meant to be there according to NHS NICE Guidelines backed up by statutory guidance, as an autism care pathway.

    How can MHS support even those rare Aspies/auties without anxiety etc. if they do not understand autism spectrum?  This was my point in what I posted before, I have a neurological difference, I have an obsessive thinking style, I have sensory difficulties etc. so any support they give me for me mental health alone must bear that in mind and be tailored accordingly as not all therapies will work on an autistic person, and it can't because they don't have expertise in ASCs.

Reply
  • stranger said:

    [quote]I have been told by adult services that they have no expertise in Asperger's even though they try to tailor therapy to "individual needs" (yeah, um not quite sure how those two go together) so I cannot get support based on my neurological difference.[/quote]

    You may find (as some of us have) that you're too high functioning for learning disability support (IQ above 70) and mental health are no good for you because you don't actually have a mental illness.

    My "support worker" was useless and clearly didn't understand the issues I have. I've tried getting back in touch with social services; but they don't want to know.

    It wasn't therapy for Asperger's it was therapy for anxiety and PTSD.  Most of us do have co-morbid mental health issues, (in a study of children on the spectrum here http://www.ncbi.nlm.nih.gov/pubmed/20177765 it was 74%, during adulthood it most likely is higher due to trying to exist and fit in, in an NT society and how that makes us increasingly anxious and depressed over time).

    The point is, mental health services (MHS) are meant to support people with AS/HFA, that means not only for their mental health issues but coping with their AS/HFA (such as coping skills and techniques or whatever).  That support is meant to be there according to NHS NICE Guidelines backed up by statutory guidance, as an autism care pathway.

    How can MHS support even those rare Aspies/auties without anxiety etc. if they do not understand autism spectrum?  This was my point in what I posted before, I have a neurological difference, I have an obsessive thinking style, I have sensory difficulties etc. so any support they give me for me mental health alone must bear that in mind and be tailored accordingly as not all therapies will work on an autistic person, and it can't because they don't have expertise in ASCs.

Children
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