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advice for choosing the clinic

satchin

Hello, I am a parent of a child diagnosed with autism last year, he is 5. We are new in UK and coming from another European country and currently in Oxford. Do you know how to approach autism expert or we always have to go through GP. Still learning the medical system in UK...We have initiated the process with GP, but it takes ages as first pediatrician will see him and then the rest. I was expecting more urgent procedure depending on his needs, I am afraid, this is too slow and would inhibit the progress otherwise he would have made. Thanks for your help.

Parents

  • In my opinion, which is based on my own experiences and from reading a lot about the experiences of others, your only option if you want quicker action is to go private.

    I think people think that the UK has streets paved with gold when they come from outside of the UK.  We have a stretched, mis-managed NHS which will always opt for the cheapest route when it can and when it comes to autism is woefully inadequate.

    The government brought in laws about autism but no-one is enforcing authorities doing what they are supposed to.

    Most CAMHS/child development services have very long waiting lists and follow-up care is non-existent in most cases.

    Once the child is diagnosed you are left to your own devices, and I have read of parents using their mortgage money to pay for therapy their autistic child needs because the NHS fails to provide the care.  The NHS deliberately doesn't agree that all methods of therapy are proven to be effective as a way to say they will not fund particular treatment.  They are very strict.  They will also not agree to funding even for things they do provide if they do not agree that the need is great enough.  Decisions on need are left to the arbitrary decisions of clinicians.

    My daughter needs OT and has been waiting on a list which jumped from 6 months to a year long overnight.  In the meantime she constantly has accidents and can't even run in a co-ordinated way, she can fall over just walking along normally.

    Ask your GP, but unless you are extremely lucky you will struggle to get support or at least will be on very long waiting lists.

Reply

  • In my opinion, which is based on my own experiences and from reading a lot about the experiences of others, your only option if you want quicker action is to go private.

    I think people think that the UK has streets paved with gold when they come from outside of the UK.  We have a stretched, mis-managed NHS which will always opt for the cheapest route when it can and when it comes to autism is woefully inadequate.

    The government brought in laws about autism but no-one is enforcing authorities doing what they are supposed to.

    Most CAMHS/child development services have very long waiting lists and follow-up care is non-existent in most cases.

    Once the child is diagnosed you are left to your own devices, and I have read of parents using their mortgage money to pay for therapy their autistic child needs because the NHS fails to provide the care.  The NHS deliberately doesn't agree that all methods of therapy are proven to be effective as a way to say they will not fund particular treatment.  They are very strict.  They will also not agree to funding even for things they do provide if they do not agree that the need is great enough.  Decisions on need are left to the arbitrary decisions of clinicians.

    My daughter needs OT and has been waiting on a list which jumped from 6 months to a year long overnight.  In the meantime she constantly has accidents and can't even run in a co-ordinated way, she can fall over just walking along normally.

    Ask your GP, but unless you are extremely lucky you will struggle to get support or at least will be on very long waiting lists.

Children
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