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Hello and diagnostic services?

NAS82976

Hi there,  I have a daughter who is an older teenager. She was referred to a paediatric consultant through NHS for investigation of Autism and/or ADHD and their initial tests indicated positive for both but that was not a full diagnosis, just early tests (based upon questionnaires, some quick ADHD eye tracking test and a very detailed discussion/questioning with the consultant, who was excellent). She was then referred for diagnosis, but we have heard it could be a 2-year wait. I am thinking of going private for both diagnosis and to get some support for her. She is very high functioning but hitting a brick wall in some of her education so this is starting to get more urgent. All this is very new for me so I am confused what to do, if anyone can help with these questions it would be great!

  • If I go for private diagnosis with a registered team, will this be fed back into her NHS record and recognised? How do I join up any private consultation to her NHS care? Should I contact her GP first before going ahead (trying to avoid any delay)?
  • We are in the North East Essex area so a place in the Chelmsford, Colchester, Manningtree area would be best. I have seen there are Autism Anglia in Colchester and Acorn Autism in Kelvedon. Does anyone have experience with either of them? She needs some kind of support (one-2-one counselling or CBT or something) as well as diagnosis so looking for advice on services beyond just simple diagnostic services.

A dad from North East Essex

Parents

  • If and when she gets a private that’s it. You can either leave it at that or you can inform your GP by sending a letter and a copy of the report. They will probably then want a follow up appointment or call with you. It’s entirely your choice if you want to tell your GP. 
    It depends what you wish to gain from it as well.  She can get support at school with or without a diagnosis, and she can get therapy too if there’s something specific that needs the support.

    You could refer her now for CBT or similar. Children are seen slightly quicker than us adults. They can assess her at least, and see what things might be beneficial. 
    what do you think she needs counselling for?

Reply

  • If and when she gets a private that’s it. You can either leave it at that or you can inform your GP by sending a letter and a copy of the report. They will probably then want a follow up appointment or call with you. It’s entirely your choice if you want to tell your GP. 
    It depends what you wish to gain from it as well.  She can get support at school with or without a diagnosis, and she can get therapy too if there’s something specific that needs the support.

    You could refer her now for CBT or similar. Children are seen slightly quicker than us adults. They can assess her at least, and see what things might be beneficial. 
    what do you think she needs counselling for?

Children
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