Feeling overwhelmed and emotional

My son is 5 years old and I have 'known' that he is autistic since he was ~2 years old (I have previously worked with autistic children and believe I am too, undiagnosed). I approached the health visitor about getting an assessment earlier this year and when looking at his development/skills etc she agreed to refer him. His school have now also raised their 'concerns' and are looking at putting him on the SEN register and organising an EHCP. I emailed the health visitor again last night to ask about our last appointment in more detail and she said 'developmental delay in all areas except communication' (he has problems with his speech so feel that is inaccurate but besides the point for here). 

None of this came as a surprise but since hearing the school's concerns and seeing the words there in black and white 'developmental delay' I have felt so emotional and overwhelmed. I think to a degree I have almost 'ignored' on my part everything that is more difficult, the extra care, the extra needs, compared to my older children as he is my 'baby' and I have mothered him, IYSWIM. I haven't accepted that actually my mothering isn't enough, he needs more help, support and assistance. I am worried now what school will be like for him, what life will be like. Now he is 'out in the world' I feel less in control and unable to protect him as I could before.

Sorry for the rant, hoping someone may feel, or have felt the same.

Parents
  • Hi.   I am feeling similarly overwhelmed.   My daughter is 15 and has recently been diagnosed ASD and ADHD.  Like you, we have ‘known’ for years but it was never an issue before now but puberty has caused things to worsen so we had to get an official diagnosis. 
    I just feel like I’m in a maze, feeling my way and am a bit lost.   Not sure of the ‘right’ things to do.   Not even sure why I’m working here - just helps to know I’m not the only one.    And through her process and diagnosis I have discovered that I very likely have ADHD too .

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  • Hi.   I am feeling similarly overwhelmed.   My daughter is 15 and has recently been diagnosed ASD and ADHD.  Like you, we have ‘known’ for years but it was never an issue before now but puberty has caused things to worsen so we had to get an official diagnosis. 
    I just feel like I’m in a maze, feeling my way and am a bit lost.   Not sure of the ‘right’ things to do.   Not even sure why I’m working here - just helps to know I’m not the only one.    And through her process and diagnosis I have discovered that I very likely have ADHD too .

Children
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