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Feeling let down

Lou31

Hi has anyone else been in this situation???

For 3 years we've been fighting for my son to get his diagnosis.  That is 3 years of meetings, appointments and assessments (well I'm sure most of you know what it's like!!!).  All the professionals agree ASD - that is the senior SALT, senior EP and consultant Paediatrician.  But we can't have an official diagnosis because we haven't been through the correct procedure!?!  We have to wait another 6months if we want a diagnosis although I only have their word on the timescale and suspect it will take a good deal longer.

Why can't they understand it's hard enough as it is without making us jump through hoops.  I got cross with an administrator on the phone yesterday after she told me she felt she understood what it was like - I told her unless she'd been there she couldn't possibly imagine.

On top of that all the other parents I meet seem to have very high functioning children and although my son is verbal and doing really well I've been told he has moderate to severe learning disability and developmental coordination disorder.  Have a wonderful supportive family but am beginning to feel like we're the only ones out here...  I worry about the future.

Thanks for reading

Parents

  • personal versus impersonal...,, we live in a society that by adminstration is impersonal,, people in society have been taught to a take a third party non-risk position unless they are part of your family, and even now with individual society and high divorce rate that sphere is reducing.

    quote "I got cross with an administrator on the phone yesterday after she told me she felt she understood what it was like - I told her unless she'd been there she couldn't possibly imagine."

    adminstrator,, on the phone,, she told me she felt she understood what it was like,,,, this is the classic non-personal approach to society, that is why the NAS or any other adminstration will not work,, because it is set up not too be personal, so therefore an impersonal system is effective for individual needs.

    You need to get some face to face in this system, find real people who understand and are willing to assist,,, unfortunately where are these people ? All I can suggest is do what you did with that adminstrator,, talk to them real, face to face if you can, don't mince words,, talk human ! NOT system persona.  I love doing this, speaking in real tongue,, adminstration system can not handle it,, the human side is trained out of them,, but the more we all just speak truth, the better the world will be.

    TELL THEM HOW IT IS for you ! Get personal with true honesty.

     

Reply

  • personal versus impersonal...,, we live in a society that by adminstration is impersonal,, people in society have been taught to a take a third party non-risk position unless they are part of your family, and even now with individual society and high divorce rate that sphere is reducing.

    quote "I got cross with an administrator on the phone yesterday after she told me she felt she understood what it was like - I told her unless she'd been there she couldn't possibly imagine."

    adminstrator,, on the phone,, she told me she felt she understood what it was like,,,, this is the classic non-personal approach to society, that is why the NAS or any other adminstration will not work,, because it is set up not too be personal, so therefore an impersonal system is effective for individual needs.

    You need to get some face to face in this system, find real people who understand and are willing to assist,,, unfortunately where are these people ? All I can suggest is do what you did with that adminstrator,, talk to them real, face to face if you can, don't mince words,, talk human ! NOT system persona.  I love doing this, speaking in real tongue,, adminstration system can not handle it,, the human side is trained out of them,, but the more we all just speak truth, the better the world will be.

    TELL THEM HOW IT IS for you ! Get personal with true honesty.

     

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