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New to this

Chivvy

Hello

I'm the mum of a 15yo girl only just going through diagnosis.

I'm new to this it's been a terrible journey to diagnosis and when I get these moments to myself (rare) I feel such a sense of loss, a real sense of grief. People say your child is still the same child but I can't see that as mine has masked for 15 years and now doesn't mask (which is good) but that kind of makes her different to the way she was. And I know we're in the thick of bad stuff right now and it will get better.

I just wanted to reach out, see if someone out there knows what it is to feel lost and loss in the wake of new diagnosis after 15 years.

 And actually I just want to state it fairly anonymously that this stuff hurts. 

I know I'll feel better at some point.

Thanks for reading.

Parents

  • Hi, I've just been diagnosed at the age of 25. I wish I had known sooner- I think that would have really helped me and would have helped avoid some of the challenges I am facing now. So I think it is a very positive thing that your daughter is getting an assessment now rather than later on. I am also still coming to terms with being autistic- I have gone through all kinds of emotions from doubt to a sense of relief and a sense of belonging, feeling confused, overwhelmed, broken, more accepting of myself. But overall knowing that I am autistic is positive. There is nothing wrong with being autistic. In fact some of the traits can be advantages (they are for me - my hyperfocus and love for details and special interest in science make me good at my work as a scientist) and of course there are challenges but I think you are much better equipped to deal with these if you know that you are autistic and understand why some situations/things might be more difficult. I wish they would stop calling autism a disorder and instead call it autism spectrum variation. How is your daughter coping with it? 

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  • Hi, I've just been diagnosed at the age of 25. I wish I had known sooner- I think that would have really helped me and would have helped avoid some of the challenges I am facing now. So I think it is a very positive thing that your daughter is getting an assessment now rather than later on. I am also still coming to terms with being autistic- I have gone through all kinds of emotions from doubt to a sense of relief and a sense of belonging, feeling confused, overwhelmed, broken, more accepting of myself. But overall knowing that I am autistic is positive. There is nothing wrong with being autistic. In fact some of the traits can be advantages (they are for me - my hyperfocus and love for details and special interest in science make me good at my work as a scientist) and of course there are challenges but I think you are much better equipped to deal with these if you know that you are autistic and understand why some situations/things might be more difficult. I wish they would stop calling autism a disorder and instead call it autism spectrum variation. How is your daughter coping with it? 

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