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Chivvy

Hello

I'm the mum of a 15yo girl only just going through diagnosis.

I'm new to this it's been a terrible journey to diagnosis and when I get these moments to myself (rare) I feel such a sense of loss, a real sense of grief. People say your child is still the same child but I can't see that as mine has masked for 15 years and now doesn't mask (which is good) but that kind of makes her different to the way she was. And I know we're in the thick of bad stuff right now and it will get better.

I just wanted to reach out, see if someone out there knows what it is to feel lost and loss in the wake of new diagnosis after 15 years.

 And actually I just want to state it fairly anonymously that this stuff hurts. 

I know I'll feel better at some point.

Thanks for reading.

Parents

  • My experience is that I suspected something was different, which after research I thought was ASD quite a few years ago, but after a lot of challenges finally got a diagnosis 2 and a half years ago. 

    Having a diagnosis has helped to get more understanding at school although he still masks to an extent there.

    There is a sense of loss in some things that we cannot do and also for him as he wishes he didn't find some things so hard.

    I understand what you are saying and my experience has been that in the end you try to look for the positives to celebrate and particularly understand that when things go wrong it is not intentional. It is also difficult as a teenager trying to have as much freedom as others, but needing more support than peers.

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