Waiting for ASD diagnosis but already sceptical of the outcome...

We've had problems with our 12 year old daughter for years and finally got a private assessment (awaiting diagnosis next week) after GP referral. Strong indications from psychiatrist suggest she's borderline case, so we're suspect she won't receive ASD diagnosis.

Our struggle is not that she doesn't receive a diagnosis for ASD but that we're then back to square one trying to find out what the problem is - it could be extreme anxiet. Obviously, we've not received the outcome yet so I'm jumping the gun slightly but also I'm a realist and he was clearly indicating it's not clear cut.

My question for the group is two-fold really: how often do GPs refer for ASD and of those referrals how many are not even ASD. If so it feels like we've been led down the wrong path. I guess I'd like to know that we've done the right thing and that health professionals rarely refer for ASD unless they strongly suspect behaviour meets a certain threshold. Any advice or experiences much appreciated.

Parents
  • i think its easy for them to refer anyone, just that you end up never hearing from it and your referal will probably get lost along the way and years will pass and you will remember nothing got back to you about your referral lol

    gp refer you for anything, then dont care as its out of their hands once referred. place they referred you to has a 5 year wait que, they lose your details and refferal along the way and never get back to you.... honestly you probably did the right thing going private...

Reply
  • i think its easy for them to refer anyone, just that you end up never hearing from it and your referal will probably get lost along the way and years will pass and you will remember nothing got back to you about your referral lol

    gp refer you for anything, then dont care as its out of their hands once referred. place they referred you to has a 5 year wait que, they lose your details and refferal along the way and never get back to you.... honestly you probably did the right thing going private...

Children