Toiletting issues

Hello, my son is nearly 4 and having assessments for ASD. He was fully toilet trained by 22 months, and had no signs of ASD at this point. His ASD symptoms began at around 2.5 years, and have been gradually getting more and more profound. About a year ago, we started having problems with toiletting. He just will not (or cannot?) tell anyone when he needs to go anymore. He will just hold on and hold on for hours and hours until he eventually has an accident. I don't usually let it get to this point at home, as I can tell when he needs a wee, so I take him to the loo, but at school he just constantly wets himself, and refuses to go when told. He has also become TERRIFED of going for a poo. He will hold on for days, and eventually ends up in such pain and discomfort, that I take him to sit on the loo. He then cries and screams until he manages to go. At school he has had some soiling accidents and he refuses to go with anyone except myself. He is not constipated by the way, simply holding on to it! This is becoming a major issue as it is taking over our life, and school are constantly moaning at me about it, as they just don't know how to deal with it. Has anyone else had similar issues with their children, and any advice would be really helpful.

Parents
  • Thats ok, i understand.

    I was really worried about "accidents " at school with the dulcolax because it is a stimulant, it has never happened.  I DID TO BE HONEST KEEP HIM OFF SCHool at first if he was on a high dose  of the dulcolax (wich is normally increased every other day if he has not gone to the toilet).  i did not want my son to have the embarassement, but eventually i decided to send him and see, that and the school were giving me a hard time over absences!  i realised he did not want the embarassement either andwould use the toilets if needed.  I informed school that he may not have time to request the toilet he may just need to go, and they were ok with that (my son is quiet and would be too shy to ask).  if an accident did occur it would only be the once as you would knowto reduce the medicine and be wary of that dose next time.  My son still holds on till he gets home, but atleast he then goes!

    I WAS TOLD WHE HE FIRS SAW THE osp dr that it was something that took time to sort out if hehasd the problem for 2 years it would probably take the same amount oftime to put right as it is a slowly does it watch how he is with the medicines kind of thing and adj his diet as you go.

    IT IS REALLY STRESSFULL TO WATCH YOUR CHILD SUFFER WITH THIS, My son still has problems after an illness or if we go somewhere new.  He also screams and cries when he finally goes with  the discomfort, and he is scared, breaks my heart, but the occasions are getting fewer and the medicine has reduced as he has gotten older and has more episodes of passing a comfortable stool after missing a day or two with the help of the medicine and eventually he can come off it.  HIS RECORD WAS 11 days!!! ten days on six or so occcasions horrible, but it can be sorted get referred and start the process.  THE GP means well but are not experts in this field.  Make sure you keep getting him to sit on the toilet twenty minutes after each meal time, the magic no apparently so the experts tell me it helped with my son.

    Good luck again

    TAKE CARE

    Puffin

Reply
  • Thats ok, i understand.

    I was really worried about "accidents " at school with the dulcolax because it is a stimulant, it has never happened.  I DID TO BE HONEST KEEP HIM OFF SCHool at first if he was on a high dose  of the dulcolax (wich is normally increased every other day if he has not gone to the toilet).  i did not want my son to have the embarassement, but eventually i decided to send him and see, that and the school were giving me a hard time over absences!  i realised he did not want the embarassement either andwould use the toilets if needed.  I informed school that he may not have time to request the toilet he may just need to go, and they were ok with that (my son is quiet and would be too shy to ask).  if an accident did occur it would only be the once as you would knowto reduce the medicine and be wary of that dose next time.  My son still holds on till he gets home, but atleast he then goes!

    I WAS TOLD WHE HE FIRS SAW THE osp dr that it was something that took time to sort out if hehasd the problem for 2 years it would probably take the same amount oftime to put right as it is a slowly does it watch how he is with the medicines kind of thing and adj his diet as you go.

    IT IS REALLY STRESSFULL TO WATCH YOUR CHILD SUFFER WITH THIS, My son still has problems after an illness or if we go somewhere new.  He also screams and cries when he finally goes with  the discomfort, and he is scared, breaks my heart, but the occasions are getting fewer and the medicine has reduced as he has gotten older and has more episodes of passing a comfortable stool after missing a day or two with the help of the medicine and eventually he can come off it.  HIS RECORD WAS 11 days!!! ten days on six or so occcasions horrible, but it can be sorted get referred and start the process.  THE GP means well but are not experts in this field.  Make sure you keep getting him to sit on the toilet twenty minutes after each meal time, the magic no apparently so the experts tell me it helped with my son.

    Good luck again

    TAKE CARE

    Puffin

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