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Newly diagnosed son, am totally lost, any advice or support is so very welcome

Victoria

hi everyone

We are right at the very beginning of our journey.

My 9 year old son was diagnosed a week ago with autism and language disorder associated with autism.

This has all happened within the space of a couple of months, from me having a quick word with the teacher about wondering if he has some sensory issues going on, to the teacher saying 'oh i assumed you knew he was on the spectrum', a few meetings with the senco at school, and his assesment i managed to scrape together enough money to have it done privately (lets just hope my car doesnt breakdown anytime soon!) 

Now he has a diagnosis which is great for moving forward but..I am completely overwhelmed. I have no idea what the next steps are, other than a meeting with the school senco on the first day back in september. Feeling very lost and very alone. I keep telling everyone its fine, its all fine. But you know what, its not fine, its not fine at all. I feel so guilty that this hasnt been picked up sooner, how ive missed so many red flags, how ive just put all the little things down TO quirks, how i havent joined the dots.. the list goes on and on.

I just wanted to reach out to other parents, i feel so overwhelmed, Im ashamed to admit I  know nothing about autism and I dont even know where to start? There is so much information but its all so overwhelmingi dont know where to start? feel like an utter failure and i dont know where to turn.

Any advice or support is more welcome than youll ever know xx

Parents

  • start from saying  autistic instead of person with autism, including your son 

    there is nothing wrong with your son

    perfectly normal autistic

    autistic and allistic find it hard to communicate without conflict if they don't know about it

    so you and him should become aware of it, for starters,https://www.youtube.com/watch?v=9j6fxcRXF60 

    don't push him to talk about feelings, most likely it's a gordon's knot for him, so he won't be able to answer anyway

  • in reply to Mariusz

    Thank you for your reply, i really apprciate it.

    Sorry if my original post came across as if I felt there was something wrong with my son. Thats not the case at all, hes amazing and I wouldnt change anything about him, ever. I was just trying to explain everything thats happened in a very short space of time.

    Im just struggling with getting my head around it all and where to even start. I want to know how i can help him, but i have no idea where to even start. Its all very overwhelming. I feel incredibly alone.

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  • in reply to Mariusz

    Thank you for your reply, i really apprciate it.

    Sorry if my original post came across as if I felt there was something wrong with my son. Thats not the case at all, hes amazing and I wouldnt change anything about him, ever. I was just trying to explain everything thats happened in a very short space of time.

    Im just struggling with getting my head around it all and where to even start. I want to know how i can help him, but i have no idea where to even start. Its all very overwhelming. I feel incredibly alone.

Children