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Can u reverse a diagnosis

Sudista

Son is 16, he was diagnosed when he was 9 YO he is very high functioning. He thinks that the diagnosis is wrong or maybe what he needed help with like fine motor skills and social cues are now “well mastered “ He wants to challenge his diagnosis and he thinks that whatever is written is not representative of him anymore. Can we do that? He was diagnosed at Springfield Hospital Tooting, how can we get them to see him please? Any help much appreciated. It doesn’t help also that the field he wants don’t take autistic children.

Parents

  • The only way to remove a diagnosis is if it was inaccurately made in the first place. You say he did have social problems and fine motor problems. There could have been other explanations for that, but they must have thought the other criteria of autism were also met.

    You say his social skills are "mastered"...yes, some of us learn good compensatory strategies, but it doesn't make our autistic differences go away, it means we can mask and make it seem like they aren't there. And he feels the assessment's picture of him does not represent him "any more"...well, my autism certainly presents differently now to when I was a child, and to how it will be as I get older. Some of my social difference are way less noticeable, but the sensory difficulties get ever harder for me to handle. You just can't grow out of your autism.

    If the diagnosis was correctly made, it ultimately would not do him any favours to remove the diagnosis, he'll still be autistic as long as he lives and it will always be affecting him on some level.

    Nevertheless, if he genuinely thinks that the diagnosis wrong in the first place, and in fact he had some other issue as opposed to autism as a kid, he could be reassessed, although I doubt you would get that on the NHS. I should think they would have to be able to explain the difficulties he had as a child in some other way as well as proving the absence of autistic traits now.

    All that said, I do very much feel for him that his career path is denied him. That does seem very unfair. Not every autistic person would be suitable for the army, but some could make good soldiers. It would be better for them to assess his capabilities before excluding him.

Reply

  • The only way to remove a diagnosis is if it was inaccurately made in the first place. You say he did have social problems and fine motor problems. There could have been other explanations for that, but they must have thought the other criteria of autism were also met.

    You say his social skills are "mastered"...yes, some of us learn good compensatory strategies, but it doesn't make our autistic differences go away, it means we can mask and make it seem like they aren't there. And he feels the assessment's picture of him does not represent him "any more"...well, my autism certainly presents differently now to when I was a child, and to how it will be as I get older. Some of my social difference are way less noticeable, but the sensory difficulties get ever harder for me to handle. You just can't grow out of your autism.

    If the diagnosis was correctly made, it ultimately would not do him any favours to remove the diagnosis, he'll still be autistic as long as he lives and it will always be affecting him on some level.

    Nevertheless, if he genuinely thinks that the diagnosis wrong in the first place, and in fact he had some other issue as opposed to autism as a kid, he could be reassessed, although I doubt you would get that on the NHS. I should think they would have to be able to explain the difficulties he had as a child in some other way as well as proving the absence of autistic traits now.

    All that said, I do very much feel for him that his career path is denied him. That does seem very unfair. Not every autistic person would be suitable for the army, but some could make good soldiers. It would be better for them to assess his capabilities before excluding him.

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