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Personal Independence Payments application (PIP) waiting time?

Mysterio23

Hi guys, my 18 year old was in receipt of DLA throughout his childhood. Diagnosis of Aspergers, ADHD, Tourette’s, OCD and is trans f to m. This was stopped when he came of age and then PIP was automatically applied for - but refused. Over the past 2 years, he has struggled massively in the big outside world and we are finding we have to chaperone him everywhere. Other people are the main problem - the bullying and abuse has been horrendous. He is no naive and vulnerable and I’m petrified for his safety. Also, he is not coping with day to day stuff like catching the bus, making meals, etc. So with this in mind, we feel he needs extra help and have reapplied for PIP again. This was about 4 months ago and we’ve heard nothing! Is there a big back log of applications, does anybody know? There has been zilch communication and when I call the helpline, I’m literally on there for ages and have to hang up in the end. Incredibly frustrating! If anybody knows about waiting time frames, please enlighten me. Thank you!

Parents

  • Thank you everybody for your kind responses. The whole application process sounds like a massive ordeal and I’m already getting sensory overload and stress just thinking about it (I’m an Aspie Mum!). I do worry about my son’s future when we’re gone. We are ‘older’ parents too. I don’t know how he will cope in the big bad world. He’s only been in college since September and has already been threatened with having his throat slit, co-ersed into taking drugs, stalked, threatened with being stabbed, beaten up, ‘cancelled’, had alcohol poisoning twice and had paramedic treatment, accosted by complete strangers on the street and abandoned by (so-called) friends -  the list goes on. It’s horrifying and we don’t even live in a big city. He is incredibly trusting and naive and people have taken advantage of his sweet nature as well as bullying him and back stabbing him. He doesn’t pick up on social cues which leaves him open to ridicule and misunderstanding. There are some truly awful predators out there. We are having to chaperone/escort him everywhere. People seem to sense somehow that he is a victim. He looks completely normal (to me), a handsome young man with the world at his feet… But there must be something about him that makes him stand out. I’m worried sick about him being out on his own. That’s why PIP would help. He would be able to afford to take taxis, maybe we could pay for an enabler? At the moment, he gets nothing. Anyway, sorry about ranting and thanks for listening. X

Reply

  • Thank you everybody for your kind responses. The whole application process sounds like a massive ordeal and I’m already getting sensory overload and stress just thinking about it (I’m an Aspie Mum!). I do worry about my son’s future when we’re gone. We are ‘older’ parents too. I don’t know how he will cope in the big bad world. He’s only been in college since September and has already been threatened with having his throat slit, co-ersed into taking drugs, stalked, threatened with being stabbed, beaten up, ‘cancelled’, had alcohol poisoning twice and had paramedic treatment, accosted by complete strangers on the street and abandoned by (so-called) friends -  the list goes on. It’s horrifying and we don’t even live in a big city. He is incredibly trusting and naive and people have taken advantage of his sweet nature as well as bullying him and back stabbing him. He doesn’t pick up on social cues which leaves him open to ridicule and misunderstanding. There are some truly awful predators out there. We are having to chaperone/escort him everywhere. People seem to sense somehow that he is a victim. He looks completely normal (to me), a handsome young man with the world at his feet… But there must be something about him that makes him stand out. I’m worried sick about him being out on his own. That’s why PIP would help. He would be able to afford to take taxis, maybe we could pay for an enabler? At the moment, he gets nothing. Anyway, sorry about ranting and thanks for listening. X

Children
  • in reply to Mysterio23

    By sound of things I'd encourage a change college or something. Something doesn't seem right having read what I just did. Maybe I'm just not aware that this stuff happens everywhere. I wouldn't even know what many drugs look like and certainly haven't seen any ever. Seems that he might be drawing himself somehow close to negative and dangerous crowds.

    Definitely try to talk and get through in a grown up way. With right advise and support I'd say he should develop a better awareness of avoiding people who pose a threat and avoid them as he gets older. The adult world is a massive and scary thing for all us autistics just coming into it. It never becomes not scary. But hopefully things become a bit less scary. It's a long road but we do the best we can.

    I guess I'm slightly less unfortunat being on the milder end of spectrum but every single one of us is different. I can't speak to worrys of a parent either I don't have kids. I'm pretty sure my Mum has worried much about me and probab still does. I worry about myself. I had many issued growing up thats for sure and still do today. I hope it gets at least a bit better. And it may get a lot better god willing. 

  • in reply to Mysterio23

    Do not apologise for ranting, there are lots of parents on here who have the same worries. I try to take each day as it comes, but I too can be overwhelmed by what will happen in the future, as I am a single parent, in my 60's to a 19 year old. You are not alone, so take care