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Experiences of Crisis Teams?

Jenny Butterfly

I really feel in crisis for quite a bit of the time these days.  However, asking for help for myself and being open and honest about our situation also brings with it the worrying possibility of unwanted "help" from services untrained in autism.

I'm thinking about the Crisis Team in particular, with which we've had some very disappointing and damaging experiences.  

Is there anything to ask or be aware of that might enable us to actually get something useful from them?  Any special autism-friendly service?

Otherwise what on earth do families do when they're in crisis but know this team cannot help?

Parents

  • What can I say? All the MH service has done for me is damage me more. Crisis teams do nothing except totally screwball what you say and then do nothing. I will NEVER, EVER again reach out to them for help. If they can't help, they could at least stop hindering.

    I have a private autism informed therapist now. He's great, but not everyone can afford to pay. I had to work out my problem was SPD because of autism for myself and pay for that assessment. 

    Now that I've worked my backside off and paid a fortune to understand the problem, there is a perfect opportunity for GPs to help with a few very little reasonable adjustments - they are doing nothing.

    I am screaming in the darkness, with the only so-called help actually at best nothing, or at worst dangerous.

    I'm coming to understand the only help we have is eachother or what we can pay for. And we can't get PIP for that.

    I can see myself working to the bone at a time I desperately need to retire, for the help I need until I collapse and just give up on life.

  • in reply to Dawn

    I’m sorry that you have not received the help and support you need and deserve. It seems it’s the same for virtually everyone on here. Everyone is working so hard to feel even slightly ok. I’m in this situation too and I’m exhausted by it. My son is the same. He feels like giving up. We have no help and barely even think it’s possible for us to get help anymore. Sorry to be so negative but we do feel so abandoned and isolated. I’ve come on here because I didn’t know where to turn and I find so much solidarity on here - which means so much to me. We are obviously not alone - and yet as a group autistic people seem to have little power to demand the help they need.

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  • in reply to Dawn

    I’m sorry that you have not received the help and support you need and deserve. It seems it’s the same for virtually everyone on here. Everyone is working so hard to feel even slightly ok. I’m in this situation too and I’m exhausted by it. My son is the same. He feels like giving up. We have no help and barely even think it’s possible for us to get help anymore. Sorry to be so negative but we do feel so abandoned and isolated. I’ve come on here because I didn’t know where to turn and I find so much solidarity on here - which means so much to me. We are obviously not alone - and yet as a group autistic people seem to have little power to demand the help they need.

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