Experiences of Crisis Teams?

I really feel in crisis for quite a bit of the time these days.  However, asking for help for myself and being open and honest about our situation also brings with it the worrying possibility of unwanted "help" from services untrained in autism.

I'm thinking about the Crisis Team in particular, with which we've had some very disappointing and damaging experiences.  

Is there anything to ask or be aware of that might enable us to actually get something useful from them?  Any special autism-friendly service?

Otherwise what on earth do families do when they're in crisis but know this team cannot help?

Parents
  • The crisis team helped me once after I had a psychotic episode whilst on holiday with my ex. I had regular meetings with them in my house where they talked to me and helped by giving me resources, and I had a phone number to call at any time if I needed immediate help or support, which I used. They helped to calm me down and I still use some of the relaxation techniques I got from them now, three years later!

  • Yes, we did have them coming round for a while, followed by the early intervention team.  I wish I could say that this was helpful for us but really they just seemed to give generic advice and information, of the sort that I could easily glean from reading around or searching online. Nothing tailored and no mention of autism at all.  

    I have my own relaxation and self care routines which I've developed over the years, but in spite of this I've been unable to really help my sons.  And this is weighing on me as we get older and more ill.   

    I got the impression that they were better suited to helping with more typical presentations of psychosis rather than a kind of delusional outcropping due to the chronic stress associated with growing up as an unidentified autistic with no support.  And when nothing they gave us worked they kept retrying the same things, the same meds and approaches and reiterating offers of psychotherapy which I knew our son wouldn't accept anyway.  

    Overall, we didn't fit with their ideas of what to do, we exhausted their limited range of options, and then they discharged us "to the care of the GP".

    In effect, they simply reflected our problems back to us with comments like, "It's a pity he won't engage" (We know!  That's what we're asking for help with!) or, "We've never had anyone so reluctant to talk with us" (Thanks for placing us outside your range of experience and making us feel even more unusual and isolated!) or "Bless.  He's very ill!" (Yes, again, we know.  We're asking you what to do to help with this!).  

Reply
  • Yes, we did have them coming round for a while, followed by the early intervention team.  I wish I could say that this was helpful for us but really they just seemed to give generic advice and information, of the sort that I could easily glean from reading around or searching online. Nothing tailored and no mention of autism at all.  

    I have my own relaxation and self care routines which I've developed over the years, but in spite of this I've been unable to really help my sons.  And this is weighing on me as we get older and more ill.   

    I got the impression that they were better suited to helping with more typical presentations of psychosis rather than a kind of delusional outcropping due to the chronic stress associated with growing up as an unidentified autistic with no support.  And when nothing they gave us worked they kept retrying the same things, the same meds and approaches and reiterating offers of psychotherapy which I knew our son wouldn't accept anyway.  

    Overall, we didn't fit with their ideas of what to do, we exhausted their limited range of options, and then they discharged us "to the care of the GP".

    In effect, they simply reflected our problems back to us with comments like, "It's a pity he won't engage" (We know!  That's what we're asking for help with!) or, "We've never had anyone so reluctant to talk with us" (Thanks for placing us outside your range of experience and making us feel even more unusual and isolated!) or "Bless.  He's very ill!" (Yes, again, we know.  We're asking you what to do to help with this!).  

Children
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