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Experiences of Crisis Teams?

Jenny Butterfly

I really feel in crisis for quite a bit of the time these days.  However, asking for help for myself and being open and honest about our situation also brings with it the worrying possibility of unwanted "help" from services untrained in autism.

I'm thinking about the Crisis Team in particular, with which we've had some very disappointing and damaging experiences.  

Is there anything to ask or be aware of that might enable us to actually get something useful from them?  Any special autism-friendly service?

Otherwise what on earth do families do when they're in crisis but know this team cannot help?

Parents

  • What can I say? All the MH service has done for me is damage me more. Crisis teams do nothing except totally screwball what you say and then do nothing. I will NEVER, EVER again reach out to them for help. If they can't help, they could at least stop hindering.

    I have a private autism informed therapist now. He's great, but not everyone can afford to pay. I had to work out my problem was SPD because of autism for myself and pay for that assessment. 

    Now that I've worked my backside off and paid a fortune to understand the problem, there is a perfect opportunity for GPs to help with a few very little reasonable adjustments - they are doing nothing.

    I am screaming in the darkness, with the only so-called help actually at best nothing, or at worst dangerous.

    I'm coming to understand the only help we have is eachother or what we can pay for. And we can't get PIP for that.

    I can see myself working to the bone at a time I desperately need to retire, for the help I need until I collapse and just give up on life.

  • in reply to Dawn

    Yes, "screaming in the darkness" would summarise it for me.  I'd like a private therapist, but really they'd have to be able to offer guidance on some complex and difficult family situations.  And this would take us into areas governed by the triple harm rule and confidentiality matters because I'd be discussing my adult sons situations - without their permission but it's all impacting me quite severely.  

    The GPs seem unable to help and just give me their best, empathising "That must be hard" routine without giving me any clue as to how to manage.  And the local autism charities would give me "help" (in the areas of socialising, coping with anxiety and working - all things I've already worked on over the years) rather than helping me to help my sons. 

    It seems that my sons would have to ask services themselves but I know that they won't.  Probably not ever after all the bad experiences they've had with services   And that's their right, of course, but it leaves us as parents alone and trying (and usually failing) to cope with some very difficult issues.  

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  • in reply to Dawn

    Yes, "screaming in the darkness" would summarise it for me.  I'd like a private therapist, but really they'd have to be able to offer guidance on some complex and difficult family situations.  And this would take us into areas governed by the triple harm rule and confidentiality matters because I'd be discussing my adult sons situations - without their permission but it's all impacting me quite severely.  

    The GPs seem unable to help and just give me their best, empathising "That must be hard" routine without giving me any clue as to how to manage.  And the local autism charities would give me "help" (in the areas of socialising, coping with anxiety and working - all things I've already worked on over the years) rather than helping me to help my sons. 

    It seems that my sons would have to ask services themselves but I know that they won't.  Probably not ever after all the bad experiences they've had with services   And that's their right, of course, but it leaves us as parents alone and trying (and usually failing) to cope with some very difficult issues.  

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