Concerned our high functioning child will not be diagnosed as autistic because his traits aren’t severe.

Hi,

As parents we are in the middle of having our 7 year old boy assessed for autism. In the last consultation they are happy to continue to assess him but aren’t sure if he is on the spectrum, this is because they only spoke to him and watched his interactions for an hour, whereas at home there are so more signs of definite autism.

We are wondering if anyone else has experienced doctors not believing your child is autistic because they are high functioning and if there’s any way to have them tested for longer than a short doctor’s appointment, other than going private which we cannot afford.

Thank you in advance for any help you can give us.

Parents
  • I have a self-diagnosed condition involving ACE trauma, ASD and high sensitivity — which I freely refer to as a perfect storm of train wrecks. It’s one with which I greatly struggle(d) while unaware, until I was a half-century old, that its component dysfunctions had official names.

    Thus, it would be helpful (at least for me) to have books written about such or similar conditions involving a tumultuous combination of high sensitivity, adverse childhood experience trauma and/or autism spectrum disorder (the latter which, I’ve found, has some symptoms similar to high sensitivity).

    I read a book about highly sensitive men [The Highly Sensitive Man] that totally fails to even mention the real potential for additional challenges created by high sensitivity combining with adverse childhood experience trauma and/or an autism spectrum disorder. Similarly, The Autistic Brain completely excludes any mention of ASD coexisting with high sensitivity and/or ACE trauma, let alone the possible complications thus additional suffering created by such coexistence. And the book Childhood Disrupted, however informative, doesn’t even hint at the potential for having to suffer ACE trauma alongside ASD and/or high sensitivity.

    I therefore don't know whether my additional, coexisting conditions will render the information and/or assigned exercises from each of the three books useless, or close to it, in my efforts to live much less miserably. While many/most people in my shoes would work with the books nonetheless, I cannot; I simply need to know if I'm wasting my time and, most importantly, mental efforts.

Reply
  • I have a self-diagnosed condition involving ACE trauma, ASD and high sensitivity — which I freely refer to as a perfect storm of train wrecks. It’s one with which I greatly struggle(d) while unaware, until I was a half-century old, that its component dysfunctions had official names.

    Thus, it would be helpful (at least for me) to have books written about such or similar conditions involving a tumultuous combination of high sensitivity, adverse childhood experience trauma and/or autism spectrum disorder (the latter which, I’ve found, has some symptoms similar to high sensitivity).

    I read a book about highly sensitive men [The Highly Sensitive Man] that totally fails to even mention the real potential for additional challenges created by high sensitivity combining with adverse childhood experience trauma and/or an autism spectrum disorder. Similarly, The Autistic Brain completely excludes any mention of ASD coexisting with high sensitivity and/or ACE trauma, let alone the possible complications thus additional suffering created by such coexistence. And the book Childhood Disrupted, however informative, doesn’t even hint at the potential for having to suffer ACE trauma alongside ASD and/or high sensitivity.

    I therefore don't know whether my additional, coexisting conditions will render the information and/or assigned exercises from each of the three books useless, or close to it, in my efforts to live much less miserably. While many/most people in my shoes would work with the books nonetheless, I cannot; I simply need to know if I'm wasting my time and, most importantly, mental efforts.

Children
No Data