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Concerned our high functioning child will not be diagnosed as autistic because his traits aren’t severe.

NAS78326

Hi,

As parents we are in the middle of having our 7 year old boy assessed for autism. In the last consultation they are happy to continue to assess him but aren’t sure if he is on the spectrum, this is because they only spoke to him and watched his interactions for an hour, whereas at home there are so more signs of definite autism.

We are wondering if anyone else has experienced doctors not believing your child is autistic because they are high functioning and if there’s any way to have them tested for longer than a short doctor’s appointment, other than going private which we cannot afford.

Thank you in advance for any help you can give us.

Parents

  • Hello, I'm a parent of a young adult diagnosed with Aspergers.  We have been through the very same with our son, first when he was 9 and again at 13.  ADOS was carried out and came back showing some areas of concern but not enough. Now a young adult, Adult services carried out an assessment and have diagnosed high functioning autism.  We were told our son was probably flying just under the radar and it was missed.

    Trust your parental instincts because you as a parent know your child best and will see how they interact, behave, what they excel at and struggle with 24 hours a day.  Go prepared with notes from their childhood, their developmental history, how they interacted with others when a toddler and young child, any sensory issues, repetative behaviours and emotional issues.  

    It has taken us so long and all the time, we knew. Sometimes it might take longer for others to see, even professionals. 

    Good luck, I hope you get the support you need.  

Reply

  • Hello, I'm a parent of a young adult diagnosed with Aspergers.  We have been through the very same with our son, first when he was 9 and again at 13.  ADOS was carried out and came back showing some areas of concern but not enough. Now a young adult, Adult services carried out an assessment and have diagnosed high functioning autism.  We were told our son was probably flying just under the radar and it was missed.

    Trust your parental instincts because you as a parent know your child best and will see how they interact, behave, what they excel at and struggle with 24 hours a day.  Go prepared with notes from their childhood, their developmental history, how they interacted with others when a toddler and young child, any sensory issues, repetative behaviours and emotional issues.  

    It has taken us so long and all the time, we knew. Sometimes it might take longer for others to see, even professionals. 

    Good luck, I hope you get the support you need.  

Children