• Replies 4 replies
  • Subscribers 68 subscribers
  • Views 1017 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

Adult Autistic Son Wont go for appointments!

Mama Di

My son is 30 years old and had a late diagnosis (2015) He was 17, He also had a Diagnosis for T1 Diabetes a few months before this. He also has a social care package for a few hours a week.

He was doing pretty well before Covid (Not as well as I'd have liked)

We only just managed to get him to have 3 x Covid Jabs and his Flu jab - Anything else he just hides in his room and pretends to be asleep so i end up having to cancel all the time, I fear we are losing our touch now and he's worked out how to play us! I've had to cancel Dentist, Diabetes, Support worker and now his eye screening. 

He's put on weight, I cannot remember the last time he showered or changed his bedding, all things he used to do regularly. 

I'm beginning to lose the will to live!!!!!

Ps I also have an autistic daughter aged 24 Years. 

Hopefully i can gain some help and guidance as I don't know what to do next. Worried

  • in reply to ...

    Alex1984 - Thank you, for your thoughts - We have never been the parents to get angry or to chastise our children, in fact the opposite, we've always been fair, understanding and caring to them even pre-diagnosis. We know his bedroom is his safe place, so we try not to infringe on that. I will try to think outside the box as you suggest.

  • in reply to Daniel

    Thank you Daniel, for your input, We do try to talk to him, but its very difficult to find the right time. He spends 95% of his time in his room, gaming - he has most consoles available, gaming is his life. His room is very small so its not even possible to go in there to talk. He usually has an excuse when he does speak to us, It's too wet, Cold or sunny. I know he hates waiting room's and waiting in general, he's very complex and doesn't always know how to put his thoughts or feelings into words.

    To say i'm worried about him would be an understatement. Worried

  • Mama Di, 

    Have you tried discussing appointments with your son, asking him why he doesn't want to attend appointments? Considering what your son's doing, I would think he knows what he's doing it for. 

    There's a lot of people who don't bother talking to their children because doctors often underestimate autistic people, thinking we don't understand anything. 

    See if you can see any patterns in his behaviour.