Hair loss

My 21 year old ASD son has started losing his hair on one side, has anyone else experienced this, also he refuses point blank to see a doctor too, I just don't know what to do?

Parents
  • My son sporadically has bald patches as he “twiddles” his hair when nervous or anxious resulting in it knotting. He dislikes the feel of the knots so pulls them out which leaves the bald patch. We found that identifying the core anxiety helped as he could then focus on doing something else such as stroking his eyebrows instead. It was no over night fix but we had his hair cut as short as the bald patches allowed for combovers to discourage the knots.  Hope you find a way forward .

Reply
  • My son sporadically has bald patches as he “twiddles” his hair when nervous or anxious resulting in it knotting. He dislikes the feel of the knots so pulls them out which leaves the bald patch. We found that identifying the core anxiety helped as he could then focus on doing something else such as stroking his eyebrows instead. It was no over night fix but we had his hair cut as short as the bald patches allowed for combovers to discourage the knots.  Hope you find a way forward .

Children
  • I had similar symptoms when my son was treated at the clinic. We were given pills after the seizure was controlled. He took them for about a year. There were complications and he started to lose his hair on prolonged treatment with hormones. We went to the clinic and they offered to take a donor hair follicles and transplant it. We are now in the second phase, waiting for the hair to take root. Basically the disease is not curable, but it is somewhat controllable. We took the most radical option as there was no time to wait. The children at school were teasing him and we decided to do it.