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Other parents with teenage girls

Penny Drop

Hello, I have just joined this site. I am mother to a 16 year old girl, currently studying for her GCSE'S.  She has struggled with anxiety, sensory,language and social issues for a long time.  Things reached crisis point and she ended up refusing school and being referred to CAMHS.  The penny dropped when researching anxiety,  that my daughter has lots of Autistic traits. We are now awaiting a diagnosis,  which we have been told could take 18 months. We asked about a private diagnosis,  but have been advised that this holds little to no weight when it comes to accessing services. 

Just wondering if there is anyone else out there who is in/has been in this situation.  I find a lot of the advice/support is tailored to younger children. Or am I looking in the wrong place? 

Parents

  • It depends on the private diagnosis. Mine was done by the Consultant Psychiatrist who is the regional  NHS 'lead' (or whatever the word is) for autism.  The person in charge of NHS autism diagnosis. He does some private work on the side, as many Consultants do.   

    My GP said she couldn't recommend a service but if I found one, she'd tell me whether or not it was OK.  Her reaction to this one was about as positive as it could be.  

    Some private organisations are indeed rubbish and you have to be careful.  I suspect some NHS staff just don't like private service providers so they make sweeping statements like the one made to you. 

    I'm not an expert and I don't need benefits but the local NHS mental health services have fully accepted my diagnosis (it was one of their bosses who did it, after all).  Might be worth investigating that a bit more in your region.

  • in reply to PersonAnon

    Thanks very much for the advice. I didn't really know where to start, in terms of what to look for privately.  I will definitely explore this avenue in my area. It is a good point you raised about their position in the NHS and would certainly add weight to any diagnosis. Thank you. 

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