Other parents with teenage girls

Hello, I have just joined this site. I am mother to a 16 year old girl, currently studying for her GCSE'S.  She has struggled with anxiety, sensory,language and social issues for a long time.  Things reached crisis point and she ended up refusing school and being referred to CAMHS.  The penny dropped when researching anxiety,  that my daughter has lots of Autistic traits. We are now awaiting a diagnosis,  which we have been told could take 18 months. We asked about a private diagnosis,  but have been advised that this holds little to no weight when it comes to accessing services. 

Just wondering if there is anyone else out there who is in/has been in this situation.  I find a lot of the advice/support is tailored to younger children. Or am I looking in the wrong place? 

Parents
  • I couldn’t get anyone to listen or help my daughter between the age of 11 and 15. She finally got an NHS referral, had her assessment, and didn’t get diagnosed with anything!

    A year or more later I paid for her to go private. We came out with 3 diagnoses. It was the best thing I could have done for her. It doesn’t affect anything at all. She’s let her GP have a copy of her report, and has just started a PIP claim. She can book herself onto any NHS mental health service or access any help that may be available. The NHS treat one thing only, so should she need medication for her ADHD for example, she will have to register and be referred to that department and wait. Or, go private again for faster support. 

    Yes it’s expensive, but that’s obviously the case, since it isn’t free like the NHS. You pay for what you get in my opinion. I could barely afford jt, and aim now paying for my own assessment., but needs must. Don’t be out off. Just do your research. You want some one who has experience of diagnosing  children, and females. Someone with qualifications in ASD or a special interest. You also want to be paying one fee for the whole process from start to finish. 

Reply
  • I couldn’t get anyone to listen or help my daughter between the age of 11 and 15. She finally got an NHS referral, had her assessment, and didn’t get diagnosed with anything!

    A year or more later I paid for her to go private. We came out with 3 diagnoses. It was the best thing I could have done for her. It doesn’t affect anything at all. She’s let her GP have a copy of her report, and has just started a PIP claim. She can book herself onto any NHS mental health service or access any help that may be available. The NHS treat one thing only, so should she need medication for her ADHD for example, she will have to register and be referred to that department and wait. Or, go private again for faster support. 

    Yes it’s expensive, but that’s obviously the case, since it isn’t free like the NHS. You pay for what you get in my opinion. I could barely afford jt, and aim now paying for my own assessment., but needs must. Don’t be out off. Just do your research. You want some one who has experience of diagnosing  children, and females. Someone with qualifications in ASD or a special interest. You also want to be paying one fee for the whole process from start to finish. 

Children
  • Hello Catlover,

    Thanks for the advice. It is good to know that a private diagnosis seems to open the same doors as an NHS one. To be honest I was a bit confused as to why there seems to be this reluctance to accept them. Certainly both my GP and CAMHS advised that it (a private diagnosis) would hold little to no weight. That I can understand if I just get some quack of the Internet, but as you say you need to do your research, which I would. Also, good point about diagnosing females, I will look out for that. Thanks.