Hi. My daughter was finally diagnosed last dec but as you all know the diagnosis becomes a formality when you are living with the young person and their difficulties. We had a frightening experience when my daughter was 13 and put herself in grave danger. We were lucky and she is safe. She is coping admirably with her diagnosis and has obviously matured alot. So I hear you all asking, what is the problem? Well its me. I am not coping well. I am terrified to let her out of my sight. I do not think she has the range of scenerios to keep herself safe from harm and I live in constant dread of 'something' happening. I am hard pushed to even define what that 'something' may be. We have only recently allowed her to have a phone back after she put herself at risk using it inappropriately. Likewise she is now allowed back on facebook where she already has 192 'friends'. All checked regularly by me and most are aquaintances not friends. It is this inability to discern what people want that put her at risk. Consequently, at 15 she either has to come with us if we go anywhere or we dont go anywhere. I feel like I am in a straight jacket and every suggestion, decision is immediately followed with 'what about A?' Add to that I am on a tightrope balancing trying to allow her to be a teenager and go out with her friends but knowing where she is and that she is safe.
Has anyone got any suggestions that may help?