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Feeling Lonely

Meg

Hi! 
How do you as parents of a child/adult on the spectrum feel on a socialising basis? 
After having my daughter my close friends left, and then when I had made mum friends, my daughter got diagnosed and it became hard to leave the house and go to get togethers with friends or family, and that was just due to the fact my daughter cannot handle those type of things. 
I don't know anyone else who has a child that is on the spectrum and its becoming very lonely. 
I am literally doing the same thing just different day and I'm starting to go insane! 

Frowning2

Parents

  • I'm the same. I would like to do something, get out more, see friends but I can't leave my ASD alone, if I make plans when all is calm at home, by the time comes to go out there has been a meltdown or I'm drained so end up cancelling. I don't have people over because I never know how things will be, and truthfully a little embarrassed about the cracks on the doors when he has kicked them in a rage. 

    Also my son is great at masking so most of my friends or family didn't believe us when we said he had autism. A few dropped us because they didn't believe it and it must have been our parenting!!!

    I don't know how people do it, especially if you don't have sitters that could cope with ASD kids.

    I would love lunches & cocktails with the girls, shopping trips, spa days... But it's Netflix box sets and online shopping instead. 

    I'm going to follow this thread incase someone has figured it out already Wink

  • in reply to NAS39314

    I feel your pain. As I understand boys don’t mask it as well as girls do so what you say is interesting. 
    My daughter was only diagnosed at 21 but it was so very hidden under extreme anxiety. She’s been extremely poorly for most of her teenage years but since her diagnosis the autism is now fully on show. It’s a relief now to understand her. 
    im going to contact my local Carers organisation again. You will most likely have one in your area too? They will offer advice and you can go to support groups to meet other parents. You’re not alonHugging

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  • in reply to NAS39314

    I feel your pain. As I understand boys don’t mask it as well as girls do so what you say is interesting. 
    My daughter was only diagnosed at 21 but it was so very hidden under extreme anxiety. She’s been extremely poorly for most of her teenage years but since her diagnosis the autism is now fully on show. It’s a relief now to understand her. 
    im going to contact my local Carers organisation again. You will most likely have one in your area too? They will offer advice and you can go to support groups to meet other parents. You’re not alonHugging

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