Should we apply for a statement anyway?

I am confused about what to do, and wondering if anyone can offer any advise! My son is 6 yrs old and in Year 1. He is (and has been) on School Action + since reception but the School have had real difficulties with him in particular in yr 1. He has historically been seen by EP, OT, SALT and gets some 121 support currently.

He does not however currently have an official diagnosis. When he was last assessed he was borderline ASD and the Paed wanted to wait and see how he got on in yr1.

We are currently waiting for him to be reassessed and have spoken to Paed and sent all current reports and she has said if she can't see him in the next 4 weeks, then she would write to the school saying that based on all input she would be mindful to give him a diagnosis of ASD even ahead of the assessment.

I have had a meeting with SENCO this morning, and she has told me that Thomas definitely needs more support than they can currently offer - and we will only get this with a statement. She also said that all his teachers are adopting strategies as if he already had a diagnosis. The problem is, due to funding delays etc he has not had any SALT since Reception and she has said that the LA will reject a School Application until he has had at least two terms of SALT and this is reflected in his IEP. This obviously massively delays him getting the support he desperately needs.

SENCO is very supportive and talked about how we could apply for a statement as parents. Has anyone had any experience of this? Is it worth us doing or will we also get rejected? In my head I think surely the fact that he has been identified as having an "urgent" need for SALT should only support our application?

Thomas is hugely delayed academically (in all areas), stuggles socially, has severe gross and fine motor skills delays and at school is described as being "in a constant state on anxiety", which is just heartbreaking for me to hear. I just want to do whatever I can to try and help him. Any thoughts or advise? Should we apply for a statement independently?

Many thanks & sorry so long xxx

Parents
  • Literally right now filling in the second round of forms for statement. Man, it is time consuming! I did the first draft by hand and am now typing it up to submitt, but oh it makes for such depressing reading.... I know I'm being a bit self indulgent but it really is hard to read back what I've written and think that's my little boy... Still I feel positive to be doing something that will hopefully make a huge difference! xx

Reply
  • Literally right now filling in the second round of forms for statement. Man, it is time consuming! I did the first draft by hand and am now typing it up to submitt, but oh it makes for such depressing reading.... I know I'm being a bit self indulgent but it really is hard to read back what I've written and think that's my little boy... Still I feel positive to be doing something that will hopefully make a huge difference! xx

Children
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