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Post diagnosis

Teaplease

Hello all

My son, 10,  was diagnosed in Jan '21 with ASD. It took 5years to get this diagnosis through assessments and contact with school etc. I understand this service is so understaffed and waiting lists are ridiculously long, but since his diagnosis, we have not heard anything from the paediatrician or anybody for that matter. Is this normal? I feel like we have just been thrown in at the deep end. His school have set some things in place to accommodate my son, but even the SEN at school doesn't appear very helpful. I'm just wondering if this is normal practice? 

Thanks for reading

Chrissie

Parents

  • Unfortunately this is very normal for some people depending your location. Be active though Make contact with the people in question and ask for a follow up appointments. Request a review meeting from school and any professionals involved such a speech and language, educational psychologist etc. Request a carers needs assessment from the social work for yourself. Request a needs assessment for your son from social work. Your going to have to learn pretty much every yourself to be honest. I’d link in with National autistic society check out if they have a local branch. My local branch are excellent. 

    This forum that you’ve came to have lots of members who are autistic and have autistic children they have a wealth of knowledge and are very helpful. No question is silly or small. 

Reply

  • Unfortunately this is very normal for some people depending your location. Be active though Make contact with the people in question and ask for a follow up appointments. Request a review meeting from school and any professionals involved such a speech and language, educational psychologist etc. Request a carers needs assessment from the social work for yourself. Request a needs assessment for your son from social work. Your going to have to learn pretty much every yourself to be honest. I’d link in with National autistic society check out if they have a local branch. My local branch are excellent. 

    This forum that you’ve came to have lots of members who are autistic and have autistic children they have a wealth of knowledge and are very helpful. No question is silly or small. 

Children