Does it get better?

I guess it’s unfortunately not possible to delete a post, so I’m replacing it with this. I’ve copied and pasted the helpful parts of the replies into my notes app, but I don’t want these vulnerable thoughts and feelings out in the internet universe for other people to judge. This is the first time I’ve ever posted in an online forum looking for some empathy and I will never ever do it again.

Parents
  • Hi. My daughter is 3 and currently waiting for her assessment. 

    I have days where I feel like that too. Tonight I had a cry to myself because my daughter likes to poo on the floor and rub it into the carpet even though shes complety clean through the day. 

    We all have hard days we just have to ride them out. Is there anyone who could have him for over night  to give you some respite?? 

    Have you spoken to his school.? SENCO?? see what support is out there for you at home?? 

  • Thank you for the kind words. I’m sorry you also have hard days with your daughter. The waiting for a diagnosis is also so hard. Thank you for the kindness and empathy.

  • Just remember you are human and your feelings are valid also. Is there any particular activities he likes to do which would help distract him from a meltdown ?? Any sort of sensory toys which would gage his attention ?? 

Reply Children
  • Thank you so much! I really appreciate that. He usually just wants space during a meltdown. I’ve tried sensory toys, but he’s not interested in them during meltdowns. So, unless he wants to be held, I just sort of have to ride it out, and do trial and error to figure out what’s wrong. The tantrums have definitely been shorter in duration, but the frequency is still often. I’m hoping that his communication will increase so he will be able to tell us what he wants/needs. I feel so bad for him — I can’t imagine how frustrating that would be.

    I hope you get some answers for your daughter soon. The not knowing is so hard. And scrubbing poop off the carpet on the regular would be enough to break anyone.