Sister of an adult with undiagnosed ASD - feeling desperate

Hi, my brother is in his fifties, not diagnosed but I have long been convinced that he has ASD and he suffers with severe depression and anxiety.  He receives substantial emotional and practical support from me and our mother (in her 80s and in poor health).  He has difficulty managing his anger, frequently shouting and swearing at me and my mother, and often has difficulty eating and is underweight.  He lives alone, having moved twice in the last couple of years (when things go wrong that he can't cope with, he feels his only option is to move) and he is again trying to sell the house he moved into just 5 months ago.  He receives ESA (Employment Support Allowance), and I managed to persuade him to see his GP for the first time last week on the basis that JobCentre Plus will need to see a GP note, and she was very patient and supportive (having been confidentially briefed by me in advance) and spent an hour and a half with him - but he is refusing to engage in anything she suggested (blood tests for nutrition related issues, a further visit to her, a referral to a mental health team professional).  He is due to attend an ATOS medical assessment review tomorrow, which I am due to attend with him, but he has rung my mother this evening shouting at her, saying that he will not attend - he is clearly feeling too distressed to attend.  This is one of those times when I'm feeling at my wits end.  We can't make him attend, but I'm so worried that they might cut his ESA benefit, particularly if he refuses to attend.  Does anyone else face similar challenges with an undiagnosed adult family member?  How do you cope?  Are there strategies that could help him?  He acknowledges how unwell he feels, but attributes it all to external circumstances (being bullied when he was a child, experiencing problems with young people living in his neighbourhood, not being able to sell or buy a house, etc) and feels that the solution is for me or my mother to "sue the government" - and that any medical support, counselling, mental health referral, etc would not help solve his problems.  Any thoughts, comments, etc would be very welcome.  Thank you for reading my post.

Parents
  • I am seeking advice on how to help my son who is in his thirties. he still lives with me and has very few friends although he has a full time job and a good degree which he studied for as a mature student. He has always found social situations difficult and can appear uninterested or rude to others but I know that he craves acceptance. He also has a history of anxiety and depression. About 18 months ago he told me that he thought he was autistic, I looked at various websites and quickly realised that he probably had aspergers. He discussed having a diagnosis with the GP but was told that although she agreed that he may well have aspergers it would be difficult to refer him on as he seemed to be coping. His younger brother is due to get married soon and invited my son to his stag weekend (4 days in a group of 10). At first he looked forward to it but then started to get increasingly anxious and has put on lots of weight. He did not admit that it was the stag weekend that worried him until I asked him. Younger brother is not entirely sympathetic, I have spoken to him about giving his brother space to do his own thing if necessary and I think he will try but my son is talking about not going. There are lots of other issues but this is the most pressing. Any thoughts?

Reply
  • I am seeking advice on how to help my son who is in his thirties. he still lives with me and has very few friends although he has a full time job and a good degree which he studied for as a mature student. He has always found social situations difficult and can appear uninterested or rude to others but I know that he craves acceptance. He also has a history of anxiety and depression. About 18 months ago he told me that he thought he was autistic, I looked at various websites and quickly realised that he probably had aspergers. He discussed having a diagnosis with the GP but was told that although she agreed that he may well have aspergers it would be difficult to refer him on as he seemed to be coping. His younger brother is due to get married soon and invited my son to his stag weekend (4 days in a group of 10). At first he looked forward to it but then started to get increasingly anxious and has put on lots of weight. He did not admit that it was the stag weekend that worried him until I asked him. Younger brother is not entirely sympathetic, I have spoken to him about giving his brother space to do his own thing if necessary and I think he will try but my son is talking about not going. There are lots of other issues but this is the most pressing. Any thoughts?

Children
No Data