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Help beyond diagnosis?

R’s mummy

Hi everyone, 

our son is 5 and was diagnosed when he was 4

with ASD with demand avoidance and sensory issues.

He suffers from a lot of social anxiety and will not attend school. I went with him 1/2 a day a week and even that was too much. So he is home schooled.  

My question is to other parents - beyond diagnosis have you had any help? We have had nothing! 

My husband and I are exhausted. He is physically violent and aggressive towards us and our 2 year old daughter all day long. He is controlling and highly demanding. We are walking on eggshells all day and night long. 

I am currently writing his EHCP. Once it is submitted will we get any help then? 

Parents

  • I can't answer your question but did not get my son diagnosis at that age partly because teacher said  nothing would be done differently if diagnosed. He was extremely lucky to have a teacher that went out of her way to integrate him in the class. This makes me wonder if you could try a different school, and one of the other answers suggests this might be one way that you may get help. 

  • in reply to Gerty

    Schools are really dishonest and they will try and deter parents from seeking a diagnosis for their children because of financial restraints. if they feel that your son will get through school with very little intervention they will try because acknowledging your son has additional needs requires them to finically cover the cost of extra support while it is being explored and it can take in some cases several years before a child receives a formal diagnosis of autism or ADHD. Local authorities will only fund additional support once a formal diagnosis is given and do not back date from when schools provided the support so it come out of the school main budget. You'll often find in secondary school they will often dump children with additional needs with no diagnoses in one class sharing one teaching assistant between thirty children to save money. 

    The issue isn't necessary the school, this is a massive issue that exists across the country because of the current minster for education denial of current situation.   

  • in reply to Blue

    This was not my experience Blue. The school was fantastic and it was my choice not to get the diagnosis, they were completely fine with my choice, they started the process and got all the forms for me.

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