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Finding the wait and lack of help difficult.

Kateshep

Hey so never joined one of these before but am finding things increasingly difficult.

my son is 16 has been seeing camhs for around 3 years now they referred him for asd assessment over 2 years ago, just before the first lockdown had been told had been adcepted for an assessment but no idea when that would be, we are still waiting.

we are finding sensory issues becoming more and more severe to the point he cant stand showers or baths, he struggles with a rinse in the sink too.

he haits his hair being greasy but cant stand to wash it becomes so frustrated there have been instances of self harm.

he had been on fluoxetine for around 2 years for clinical depression which we are in the process of stopping as we feel it is no longer helping.

he struggles to maintain sleep schedule we have tried melatonin and promethazine neither of which helped.

he has come to the realisation that he failed to get any gcses and feels the prospect of college or tech like the end of the world, he hasn’t been able to leave the house without me for years now.

he also has tyoe 1 diabetes and is being treated with hormone blockers for gender dysphoria with the koi clinic, they are pushing him to socialise and attend school or he will nor be eligible for his cross sex hormones. 
so he is struggling i am struggling just looking help and advice or someone to vent too lol 

Parents

  • Sounds tough. Go ahead and vent.

    My wife has been on anti-depressants for decades - we find they lose effectiveness for her after a year or three, so they get changed. She does like Mirtazapine though as it really helps her sleep.

    I do find if she eats late - especially high sugar things - she stays awake till all hours. Sleep is also more likely if we manage to go for a a walk during the day.

    RE: Washing/greasy hair - in the distant past when I couldn't wash I shaved off all my hair and used lots of talcum powder (although I could manage the odd clean with a damp cloth). I've not tried any of the "dry-shower" products you can get nowadays.

Reply

  • Sounds tough. Go ahead and vent.

    My wife has been on anti-depressants for decades - we find they lose effectiveness for her after a year or three, so they get changed. She does like Mirtazapine though as it really helps her sleep.

    I do find if she eats late - especially high sugar things - she stays awake till all hours. Sleep is also more likely if we manage to go for a a walk during the day.

    RE: Washing/greasy hair - in the distant past when I couldn't wash I shaved off all my hair and used lots of talcum powder (although I could manage the odd clean with a damp cloth). I've not tried any of the "dry-shower" products you can get nowadays.

Children
  • in reply to moon

    Thanks, he did shave it short at the start of lockdown but he wanted to grow it so its shaved at sides n long thru the middle now when its washed n done he loves it when it gets greasy he wants to pull it out.

    we are weaning him off fluoxetine dr suggested next we wud try sertraline but alex doesnt want to start another one wants to see what he is like without the anti depressants