• Replies 25 replies
  • Subscribers 72 subscribers
  • Views 5159 views
  • Users 0 members are here
Options
Related
Hints and tips
  • To quote someone's message, first select/highlight the relevant text, and then use the Quote button that appears
  • To "mention" someone, type @ followed by the start of the forum name, and choose from the list; that person will get a notification of being mentioned

Autism assessment

NAS73459

Hi

My 13 year old daughter finally had her assessment 2 weeks ago for Autism.

We have been waiting for 3 yrs for this appointment, but have known things weren't right since she was 2 yrs old. We have been told by 4 professionals over the years (paediatrician, Ed Psych, clinical psych & gp) that if they could give the diagnosis, they would. She is what would've been classed as High functioning, has huge food issues, very sensitive to smells, ocd about things being clean & neat & in right place. Issues with clothing. Not very empathetic. Socially awkward, can come across as rude/ignorant. Can be very literal, struggles with sleep, conversations have to be about her or what she likes, hates change, has meltdowns, flaps hands quite often, very anxious & worries about everything.

She has always done well at school & they don't see any of this behaviour - she gets on and does her work, to the point of hardly talking to her friend. But if there is a problem in the school day, we certainly know about it when she gets home! 

She has a few friends, but only 1 that she will see out of school. 

Her assessment was done online due to Covid & even after all the telephone questionnaires I've done, the Ed psych & gps report, they said because she does well in school & was chatty in the assessment they can't give her an asd diagnosis! 

I feel like they've just picked out these 2 little things & ignored EVERYTHING else. 

I have a post assessment meeting on Wednesday & I want to say I disagree & that they saw the "performance" version of her - big smiles, lots of nodding in the right places kind of thing. She masks so well - to the point of mimicking how her friends speak. As soon as the video assessment was done she was back to her quirky self! 

Will it make any difference? Are they likely to change their mind?

I feel like we've known ourselves since she was 2 & all these appointments & stress & worry have all been for nothing!

Please, if you have any advice on what I can or should say or where to go from here, I would truly appreciate it.

Thanks for reading this far! 

Parents

  • That’s rediculous !!! My Autistic son got 11 A* and 4 A’s (at A level). He also had friends at school.

    I would seek a second opinion and maybe write all your thoughts down and also get your daughter to do the same.

    BTW did she complete the AQ and EQ questionnaires???

  • in reply to JohnS

    I have just had a reply saying the autism practitioner who took the assessment will call me, but not until next week.

    No, she hasn't completed any questionnaires. They have done a couple of questionnaires with me over the phone, but I don't know what they were called.

    I've read so many threads on this site saying about girls with Autism & it's exactly like my daughter!

    I just don't know what to do next! I feel like I'm repeating myself constantly but they're not listening! 

  • in reply to NAS73459

    Not all practitioners have caught up with the latest research on the non-stereotypical "male" presentation.. The current presentation can be quite subtle, albeit the signs may be stark in baby hood (mine were - but I'm sociable now), or may get worse in adolescence. But the criteria just say the traits should have been there in tolderhood, even if the person has since learned to cope or hide them.

    The Lorna Wing Centre and many other private practitioners generally do a lengthier assessment where current presentation might be less obvious, just so they can dig at little issues like ones you mention and be sure one way or the other.

    It does strike me as odd mind that they are saying she has "social anxiety" on the one hand, but is "sociable" on the other. I'm not a psychologist, so wouldn't like to guess at how that works out, but strikes me as odd.

Reply
  • in reply to NAS73459

    Not all practitioners have caught up with the latest research on the non-stereotypical "male" presentation.. The current presentation can be quite subtle, albeit the signs may be stark in baby hood (mine were - but I'm sociable now), or may get worse in adolescence. But the criteria just say the traits should have been there in tolderhood, even if the person has since learned to cope or hide them.

    The Lorna Wing Centre and many other private practitioners generally do a lengthier assessment where current presentation might be less obvious, just so they can dig at little issues like ones you mention and be sure one way or the other.

    It does strike me as odd mind that they are saying she has "social anxiety" on the one hand, but is "sociable" on the other. I'm not a psychologist, so wouldn't like to guess at how that works out, but strikes me as odd.

Children
No Data