Lost & alone

Hi,

ive just joined the community my 14yr old daughter does not have a diagnosis however the school do believe that there are traits that would indicate that she does.  However Ed psych has recommended not to pursue a diagnosis unless she is asking for it.  

im at a loss of what to do over the last 5 or 6 years she has really struggled and unfortunately this was made worse when her dad and I separated. Unfortunately she was also starting secondary school and we moved house the changes were too much for her and the impact was significant.  As my parents and I have started to identify triggers we have been able to avoid exacerbating difficult situations.  She has made significant progress but the biggest challenge I have is getting her to school, the school has been incredibly supportive but I’m feeling like I’m running out of things to try when she can’t go in.  Sometimes she will give me a reason but other times I get no communication from her at all and you can’t always be sure that what she says is actually what the the real angst.  Although I do have support I feel incredibly alone and don’t know where else to turn, I’ve offered all sorts of options for working with people but she won’t engage.  She has developed a positive relationship with her pupil support worker however she has been off sick and so she has been unable to see/speak to her which I believe is part of the current trigger to avoid school.

I don’t really know what I’m asking, I just need to share with people who might understand. 

Parents
  • NAS72884,

    It must be really difficult for you both. Coming at it from a different place, I’m 38 a mum of a non-autistic boy but am autistic myself. If you ever want to chat I’d be happy to pass on my email privately. Having grown up in regular school I can maybe offer some help about what it’s like and maybe a bit into the experience day to day of having ASD level 1. I still struggle even now, and am reluctant to put my own son in to school because of my experience (a good education all the way through to uni and part of a masters degree, but very difficult times).

    I know all of our experiences are very different but I’m here if you need support, it can be very lonely on both sides I know.

    There is a channel on YouTube called Aspergers From the Inside, by a man called Paul. It’s really really a great resource for understanding what it’s like to have Aspergers/ASD level 1 and might be helpful for you in understanding your daughter and finding ways to communicate about it.

    -L

  • Thank you for telling me about the YouTube channel, I’ve had a quick look at it and there is some really interesting information.

    I tried to find how I can private message you to chat but I can’t find it. Do you know?

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