Lost & alone

Hi,

ive just joined the community my 14yr old daughter does not have a diagnosis however the school do believe that there are traits that would indicate that she does.  However Ed psych has recommended not to pursue a diagnosis unless she is asking for it.  

im at a loss of what to do over the last 5 or 6 years she has really struggled and unfortunately this was made worse when her dad and I separated. Unfortunately she was also starting secondary school and we moved house the changes were too much for her and the impact was significant.  As my parents and I have started to identify triggers we have been able to avoid exacerbating difficult situations.  She has made significant progress but the biggest challenge I have is getting her to school, the school has been incredibly supportive but I’m feeling like I’m running out of things to try when she can’t go in.  Sometimes she will give me a reason but other times I get no communication from her at all and you can’t always be sure that what she says is actually what the the real angst.  Although I do have support I feel incredibly alone and don’t know where else to turn, I’ve offered all sorts of options for working with people but she won’t engage.  She has developed a positive relationship with her pupil support worker however she has been off sick and so she has been unable to see/speak to her which I believe is part of the current trigger to avoid school.

I don’t really know what I’m asking, I just need to share with people who might understand. 

Parents
  • Hi , thank you for sharing on the online community. If you were interested in finding out if your daughter is on the autism spectrum, you would need to have a formal diagnostic assessment. You may find it useful to have a look at the following link for further information about diagnosis and the benefits of getting one: https://www.autism.org.uk/advice-and-guidance/topics/diagnosis.

    If you have further questions, you may like to contact our Parent to Parent service, which offers emotional support and can direct you to appropriate services for information and advice. This service is confidential and run by trained parent volunteers who are all parents themselves of a child or adult with autism. They will be re-opening from 17th May.

    You can contact the team on 0808 800 4106. Please leave a message and the team will call you back as soon as possible at a time that suits you, including evenings and weekends. Alternatively you can use contact the team via web form: https://www.autism.org.uk/what-we-do/help-and-support/parent-to-parent

    I hope this helps.

    Best wishes,

    Anna Mod

Reply
  • Hi , thank you for sharing on the online community. If you were interested in finding out if your daughter is on the autism spectrum, you would need to have a formal diagnostic assessment. You may find it useful to have a look at the following link for further information about diagnosis and the benefits of getting one: https://www.autism.org.uk/advice-and-guidance/topics/diagnosis.

    If you have further questions, you may like to contact our Parent to Parent service, which offers emotional support and can direct you to appropriate services for information and advice. This service is confidential and run by trained parent volunteers who are all parents themselves of a child or adult with autism. They will be re-opening from 17th May.

    You can contact the team on 0808 800 4106. Please leave a message and the team will call you back as soon as possible at a time that suits you, including evenings and weekends. Alternatively you can use contact the team via web form: https://www.autism.org.uk/what-we-do/help-and-support/parent-to-parent

    I hope this helps.

    Best wishes,

    Anna Mod

Children
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