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Autism assessment

Heather

My son is 6 and I have been pushing for an autism assessment through school. He was observed by a lady from CLASS yesterday but my concerns are that the report will say he does not need an autism assessment due to him masking his behaviors so well in school not even the teachers, senco or anyone notices untill I said something.

What happens If CLASS  says he does not need an assessment but in actual fact he does.

Has anyone gone through this as he bottles all of his behaviors for home time right up untill bed time, it's like putting a mento in a bottle of coke nd it explodes. I have told school he is not comfortable at going in as he hand flaps and takes a while for him to walk in and only really just started to get him in on time even school had to come get him from the house in the mornings. 

I guess I'm worried that if they say he doesn't need an assessment he we will just be left no support put in place for him when he needs it. 

  • hi, i understand your struggle, i went to my doctor for help in the end to be reffered for an assessment  my son masks at school and when he comes home he explodes he also cannot stand socks and shoes which in turn makes an already stressful time for him before school even harder my advise to you would be to keep a diary, it can be very valuable my son has a lady at camhs who has helped no end with school and assessments and she has been amazing  and be persistent it does feel like nobody is listening to what you say alot of the time but finding someone who does hear you can make a huge difference i hope this helps i hope that your son gets the help he needs 

  • Hi , thank you for posting on the community. You may find the following information useful.

    The following page contains a lot of helpful information about education settings and a child with autism: https://www.autism.org.uk/advice-and-guidance/topics/education.

    This includes information regarding getting extra support for your child in their education setting.

    You may want to contact our Education Rights Service who provides information, support and advice on educational provision and entitlements. Please see the following link for further information: https://www.autism.org.uk/what-we-do/help-and-support/education-advice-line.

    I hope this helps.

    Best wishes,

    Anna Mod

  • Hi, we had a family support worker that was involved a lot with our son at his primary school, to be honest she was a godsend and helped us no end in getting caf forms sorted and the right people involved at the school, we had a specialist teacher that came in and helped get the school to introduce processes for him, such as taking breaks from class when he needed to and putting in place sensory relief for him.

    We also paid for him to have occupational therapy sessions as there was no funding for it via the nhs, the therapist was also involved with the school meetings.

    Most of the time it is a case of feeling like you are bashing your head against a brick wall, but when you find the right people it makes a big change.

    I hope your son gets the help he needs.