First time Post. Desperate dad

Hi all. I'd better do an intro. We are parents of a nearly 15 year old ASD daughter and things are going downhill fast. As we are tackling all of the normal teen issues, such as homework, too much phone and gaming time, staying up late, attitude, chores around the home, this has caused a lot more opportunities for conflict than in the years previous. Where things are going very badly though is communication. She has always been intensely private and used her autism cleverly to the point where we have lost all visibility of her online activities. She cannot participate in level headed discussions with us about it. No matter how we approach it, it will end often very quickly with her angry and running away. We have no idea if she has school problems, bullying or relationship issues as she will literally tell us nothing. We have been left guessing and worrying or looking for occasional clues to her life and happiness. On the plus side she is academically doing well and on course for good gcses. She is very ambitious and says she will move out as soon as she legally can. I think she is serious as I think she finds all interactions with people awful except her online friends. The biggest obatacle to that is her severe sensory issues around food and drink smells meaning she has no current tolerance to handling a kitchen and thus is lacking key survival skills for independence. Our biggest worry of all is that she is so fragile and delicate we have reached the point where we can not talk to her about anything sensitive at all. We tread on eggshells and normally screw that up too. If there is a important topic to discuss, see earlier mention of homework, chores, etc and we try and talk to her she blows up and gets angry at us for not understanding. I had previously thought we could at least help her to be ready for independent 'normal' adult life but now I'm starting to lose hope with that. I really am stating to think she might shoot off from home as soon as she can and live a sorry existence in the kind of squalor we couldn't tolerate or wish for. Worst of all, I'm starting to run out of the energy to care! Help!

Parents
  • As an autistic man who also had a stressful upbringing the first thing I can promise you is that she will never be normal or have a normal life ... that doesn’t have to be a bad thing though. Beyond normal is extraordinary.

    I shouldn’t worry about her living in squalor. A) most NT teenagers go to university live in squalor for 3 years and turn out fine. B) she’s in a very stressed phase of her life right now dealing with lots of schoolwork and lots of personal challenges at the same time. Energy to clean is in short supply. C) there is a kind of creative mess many autistic people indulge in. Out of sight is out of mind, as an antidote to absent mindedness any job that needs to be done or any work in progress gets left out to remind you to do it, it’s an effective if cluttered system.

    I shouldn’t worry about her cooking her own food either. Her kitchen will contain only food and ingredients for food she wants to eat. Which will make its smell more pleasant. Anyway it takes very little effort to bung a ready meal in the oven or microwave. Spending 30-60 minutes hovering over a saucepan is gods way of telling you you have too much free time and not enough imagination in your life, I don’t know many young busy working / studying people who do that with any regularity.

    As for your daughters secrecy. I’m sure you remember that age yourself. Would you have wanted your parents to know what you were talking about on the bus home? Did you close the door or check behind you when you phoned your friends on the land line? Would you have wanted them knowing about the notes or magazines you passed around or what happened behind the school bike shed? Well nor does she. It just so happens her life is online though.

    That’s not surprising. She’s autistic she’s going to find it easier to make friends with people who share her interests and who are open minded. The Internet is a very wide pool of people and it’s easier to find your crowed there.

    You won’t pry her from the Internet. We’re at a stage now where computer literacy is as important educationally as English literacy. You know my parents used to physically pull books out of my hands at the bookstore if they didn’t approve of them. But at the library they couldn’t keep track of what I was reading. It was just too big. Think of the Internet as the biggest library in the world. It’s an invaluable resource you can’t afford to deprive them of, but at the same time there’s very little you can do to stop them sneaking the karma sutra off the shelves when you’re not looking.

    As for your arguments, to an extent I wouldn’t be surprised if she doesn’t exaggerate her outrage from time to time as a way to shut down awkward conversations. On the other hand I’m wondering if being ‘fragile and delicate’ in your eyes hasn’t left her feeling very over protected. Maybe from her perspective your little talks always end with her world becoming more restricted.

    Maybe I’m being unfair to you, but I imagine a lot of your conversations starting with A) this is a thing we think is a problem, B) this is why we think it’s a problem, C) this is what we propose to do about it. That’s really a recipe for an argument not a discussion.

    Maybe if you are so concerned about how fixated she is on her online life you should first address how she might gain more options and independence in her social life offline. Because she not going to make friends at school I suspect and if you can’t find any places outside of school where she can online is all that is left.

Reply
  • As an autistic man who also had a stressful upbringing the first thing I can promise you is that she will never be normal or have a normal life ... that doesn’t have to be a bad thing though. Beyond normal is extraordinary.

    I shouldn’t worry about her living in squalor. A) most NT teenagers go to university live in squalor for 3 years and turn out fine. B) she’s in a very stressed phase of her life right now dealing with lots of schoolwork and lots of personal challenges at the same time. Energy to clean is in short supply. C) there is a kind of creative mess many autistic people indulge in. Out of sight is out of mind, as an antidote to absent mindedness any job that needs to be done or any work in progress gets left out to remind you to do it, it’s an effective if cluttered system.

    I shouldn’t worry about her cooking her own food either. Her kitchen will contain only food and ingredients for food she wants to eat. Which will make its smell more pleasant. Anyway it takes very little effort to bung a ready meal in the oven or microwave. Spending 30-60 minutes hovering over a saucepan is gods way of telling you you have too much free time and not enough imagination in your life, I don’t know many young busy working / studying people who do that with any regularity.

    As for your daughters secrecy. I’m sure you remember that age yourself. Would you have wanted your parents to know what you were talking about on the bus home? Did you close the door or check behind you when you phoned your friends on the land line? Would you have wanted them knowing about the notes or magazines you passed around or what happened behind the school bike shed? Well nor does she. It just so happens her life is online though.

    That’s not surprising. She’s autistic she’s going to find it easier to make friends with people who share her interests and who are open minded. The Internet is a very wide pool of people and it’s easier to find your crowed there.

    You won’t pry her from the Internet. We’re at a stage now where computer literacy is as important educationally as English literacy. You know my parents used to physically pull books out of my hands at the bookstore if they didn’t approve of them. But at the library they couldn’t keep track of what I was reading. It was just too big. Think of the Internet as the biggest library in the world. It’s an invaluable resource you can’t afford to deprive them of, but at the same time there’s very little you can do to stop them sneaking the karma sutra off the shelves when you’re not looking.

    As for your arguments, to an extent I wouldn’t be surprised if she doesn’t exaggerate her outrage from time to time as a way to shut down awkward conversations. On the other hand I’m wondering if being ‘fragile and delicate’ in your eyes hasn’t left her feeling very over protected. Maybe from her perspective your little talks always end with her world becoming more restricted.

    Maybe I’m being unfair to you, but I imagine a lot of your conversations starting with A) this is a thing we think is a problem, B) this is why we think it’s a problem, C) this is what we propose to do about it. That’s really a recipe for an argument not a discussion.

    Maybe if you are so concerned about how fixated she is on her online life you should first address how she might gain more options and independence in her social life offline. Because she not going to make friends at school I suspect and if you can’t find any places outside of school where she can online is all that is left.

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