First ASD assessment | Advice on how to tell my child

I have just joined this page. I hope someone can advise me.

My son has his first ASD assessment at the beginning of April and I wondered how parents/carers spoke to their children about the assessment.

He is 11 years old, low self-esteem, very communicative at home and to anyone that meets him for a few hours may not realise he has some struggles. He hates assessments, hates to be singled out and is afraid of what is being said about him. He asks that I don't tell family members about him, not even his good news and would hate to know I had to complete a 'family story' that included much of his life. He will not want to go for the assessment, and has a keen sense of injustice at being assessed and asked questions. He also won't care how easy/hard it is.

I want to build trust, so talking to him about it far enough ahead is important. However, it may end up in him refusing to go and days of ear ache and bad moods.

Any ideas on where to start with him? Thank you for reading.

Parents
  • I'm guessing every time he is assessed his life changes in ways he can't control. People treat him differently. He gets excluded from some things or maybe forced to do others. I think the key thing is to find a way he can have a sense of agency and control in the situation.

Reply
  • I'm guessing every time he is assessed his life changes in ways he can't control. People treat him differently. He gets excluded from some things or maybe forced to do others. I think the key thing is to find a way he can have a sense of agency and control in the situation.

Children