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16 year old son - struggling to get seen for diagnosis

linz19832

Hi am Lindsey

I have been trying to get my son seen for years about what I and now school think he has Aspergers.  CAn anyone give me any advice.

He was seen by speech theraoy for 7 years all the way through primary school

Through the years when I have asked for help with him, it always got put down to my parenting and to go through the Triple P programme

Moved area and got seen by someone in Glasgow who wanted us to attend a group on a Wednesday night with other parents and kids who were involved with the police(i did not attend as my son is not that way inclined, he is a very quiet shy individual who does not break the law, he was lashing out at me no one else at the time)

He is very much most comfortable in his room, curtains closed lights on regardless of time of day on his computer, very sociable online but no real friends in the outside world.

He needs prompted and encouraged with all personal care, prompted to eat, (diet is very rubbish, not alot of selections for him)

He is very capable of doing school work however doesnt bother to. He is failing his highers and nat 5s he is sitting this year.

He wont give me permission to talk to doctor on his behalf as he is now 16.

Sorry I am going on a bit but can anyone give me a bit of advice as I currently dont know where else to turn.

thanks

Parents

  • Hi Lindsey,

    I feel your pain. We had similar difficulties in getting our son assessed. We finally got him assessed aged 16. Have you managed to get him on the pathway yet? If not speak to school and get them to start the referral off. If you are thinking about going down the private diagnosis route, check with the education setting he's in now and moving on to as they don't always accept a private diagnosis.

    I would also look to local autism groups (We're lucky in Berkshire that we have an amazing group called Autism Berkshire), they can be very helpful as they know the way the system works in your area. Facebook is my best friend when it comes to getting help, support and a shoulder to cry on. Especially at the moment with lockdowns.

    Never give up hope on getting the answers you so rightly deserve, they will come. Unfortunately we have to fight far to hard to get them.

    You're doing a fab job, all the best

Reply

  • Hi Lindsey,

    I feel your pain. We had similar difficulties in getting our son assessed. We finally got him assessed aged 16. Have you managed to get him on the pathway yet? If not speak to school and get them to start the referral off. If you are thinking about going down the private diagnosis route, check with the education setting he's in now and moving on to as they don't always accept a private diagnosis.

    I would also look to local autism groups (We're lucky in Berkshire that we have an amazing group called Autism Berkshire), they can be very helpful as they know the way the system works in your area. Facebook is my best friend when it comes to getting help, support and a shoulder to cry on. Especially at the moment with lockdowns.

    Never give up hope on getting the answers you so rightly deserve, they will come. Unfortunately we have to fight far to hard to get them.

    You're doing a fab job, all the best

Children
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