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Worried about future for adult Asperger son

NAS71320

Hello, 

I'm new here, I'd like to share my worry if that's ok. 

I'm 58 and caring for my 30 year old son at home, who has Asperger's and OCD. Son is capable in a lot of ways, can do shopping, cooking, washing. He's studying online, but doesn't have a social life, even before lockdown.

He depends on me for practical help around the house, and also for emotional support and companionship.

I have arthritis, and though reasonably fit now, I'm worried about how my son will manage if I become unable to care for him. We have no other family, and I fear for the future. 

Last year I had a Carer's Assessment, which identified that future planning should be supported by a local council disability team. However, I am still waiting for a response despite enquiring. I understand that these are difficult times. But this fear is getting me down, as much as I try to stay positive. 

If anyone has any thoughts to share, they'd be much appreciated, thanks!

Parents

  • welcome to the forums. best of luck in getting the local support you are seeking. does your son see a therapist at all? or are there any groups he's in? i no, as someone with a lot of social issues, how difficult that can be. i have been in various groups myself --- many are (lol) kind of asperger-filled groups. that is, a lot of pretty quiet, pretty inward people are in them. there's fishing, ham radio, maker things, gamer things (i'm not into those), chess, various outdoor groups... 

    it would be good if your son could try some groups, be in therapy. online groups are sort of a start... does he help you much in the house? therapy may help him figure out how to be more comfortable in groups. it'll take time --- but as long as it is available and affordable, i encourage you to seek out professional. and they should understand what asd is, otherwise it might be pretty counter productive, or simply useless....

    and these forums are a good source of help. best of luck! 

Reply

  • welcome to the forums. best of luck in getting the local support you are seeking. does your son see a therapist at all? or are there any groups he's in? i no, as someone with a lot of social issues, how difficult that can be. i have been in various groups myself --- many are (lol) kind of asperger-filled groups. that is, a lot of pretty quiet, pretty inward people are in them. there's fishing, ham radio, maker things, gamer things (i'm not into those), chess, various outdoor groups... 

    it would be good if your son could try some groups, be in therapy. online groups are sort of a start... does he help you much in the house? therapy may help him figure out how to be more comfortable in groups. it'll take time --- but as long as it is available and affordable, i encourage you to seek out professional. and they should understand what asd is, otherwise it might be pretty counter productive, or simply useless....

    and these forums are a good source of help. best of luck! 

Children