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Worried about future for adult Asperger son

NAS71320

Hello, 

I'm new here, I'd like to share my worry if that's ok. 

I'm 58 and caring for my 30 year old son at home, who has Asperger's and OCD. Son is capable in a lot of ways, can do shopping, cooking, washing. He's studying online, but doesn't have a social life, even before lockdown.

He depends on me for practical help around the house, and also for emotional support and companionship.

I have arthritis, and though reasonably fit now, I'm worried about how my son will manage if I become unable to care for him. We have no other family, and I fear for the future. 

Last year I had a Carer's Assessment, which identified that future planning should be supported by a local council disability team. However, I am still waiting for a response despite enquiring. I understand that these are difficult times. But this fear is getting me down, as much as I try to stay positive. 

If anyone has any thoughts to share, they'd be much appreciated, thanks!

Parents

  • Hi, Welcome to the community.

    Although I don't have a solution for you I very much sympathize with your situation. It's difficult to stay positive at times but you have made a start by looking at your situation and having a carers assessment which is great.

    When making enquiries to the disability team try to get them to commit to when they will either have an answer for you or when they will get back to you. It's easy for them to say that they will be in touch but this won't help put your mind at ease. If they can't commit to a timeframe to getting in touch with you then either call or write/email them back to let them know you'd like some kind of timeframe and who is it that will be getting back in touch with you. If you keep doing this then they may try to push things faster for you but you are right in that it is difficult times just now so that may not help.

    There is a possibility that your situation may have been overlooked too so getting in touch with them won't do any harm.

    Sorry, I can't be of more help but I hope you make progress in the near future.

    Best wishes, John.

Reply

  • Hi, Welcome to the community.

    Although I don't have a solution for you I very much sympathize with your situation. It's difficult to stay positive at times but you have made a start by looking at your situation and having a carers assessment which is great.

    When making enquiries to the disability team try to get them to commit to when they will either have an answer for you or when they will get back to you. It's easy for them to say that they will be in touch but this won't help put your mind at ease. If they can't commit to a timeframe to getting in touch with you then either call or write/email them back to let them know you'd like some kind of timeframe and who is it that will be getting back in touch with you. If you keep doing this then they may try to push things faster for you but you are right in that it is difficult times just now so that may not help.

    There is a possibility that your situation may have been overlooked too so getting in touch with them won't do any harm.

    Sorry, I can't be of more help but I hope you make progress in the near future.

    Best wishes, John.

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