dont know what to do about my son.

Hello folks!

There is an absolute boat load of info that i could put here so ill try to keep it as relevant as possible..

my son, 9 years old, is at least suspected of being on the spectrum with aspergers.

there were assessments when he was around 3 - 4 years but signs had been noted by his nursery

with his mother and i having parted ways im basically totally unaware of an official diagnosis

but there signs.

his social iq is rather low, he dosent seem to follow conversations properly

seems to take to much of what gets said as literal / despite having explained on a handful of occasions about rhetorical questions

he still tries to answer bless him.

dosent seem to get sarcasm very well

seems very blissfully unaware of himself and his behaviour (but he is 9 lol)

despite being told that he eats all sorts with  his mum and others that have cared for him

he turns his nose up at almost everything i try to suggest (for example, he has had chicken nuggets many times else where but when ive suggested it "oh no ive not had those / dont like them" )  umm what?

uses the same old expressions when an opportunity comes up when its not needed

and he, what i can only describe as "streams to himself / others"

to elaborate , we have all seen youtubers and how they are almost constantly commentating on what they are doing

this is what he does virtually all the time (and i admit, after so long it crushes my head because he simply just does not shut up, like ever)

also, NEVER SHUTS UP lol

there have been incidents with him at school where hes hit other kids.

he does get bullied at school (according to him) but according to the school HE is the one that

is instigating and then gets upset and lashes out either physically or verbally when he dosent get his own way

although i cant be 100% but he has been caught out lying numerous times by his mum and ive caught him out too

i can go on and on and on and on but!

the plot twist commeth..

his mum has known about his Aspergers for say 4 - 5 years and basically has not told him

yes you read that right..

as far as im aware HE DOES NOT KNOW THAT HE HAS ASPERGERS

his mum has been saying that she wants to throw him a party to celebrate and shine a positive light on his aspergers

but she has been "planning" this party for about 2 and a half odd years or more..

as you might have guessed i dont believe it.. i do believe that she is not telling him because it suits her

and now she has the added excuse of the pandemic to use as to why its not happened yet, i dont see anything happening anytime soon.

my concerns are about how not knowing is holding him back..

when hes upset and is saying he is stupid, its difficult to think of how to reply as to me.him knowing that he has aspergers

would explain why he struggles with things, or struggles to understand etc so he knows that he is in fact not stupid, its (at least from what i can fathom)

the learning difficulties that come with aspergers and that he needs some extra help with whatever it might be

things like reading and pronouncing the word wrong or gives the wrong word entirely (possibly dyslexia of some degree?)

not to mention social interactions with his peers and adults around him, mis-understandings mis-interpretations

on one hand a lot of this could be down to the fact that hes a typical cheeky 9 year old

but it could also be down to aspergers..

im not even sure if his school fully know about his assessment / daignosis..

but i feel stuck, very stuck because ive respected his mother wishes to keep it from him despite not agreeing with it at all

and if i do tell him..

its just going to cause a mess, will he believe me? will he be angry at me?

will he "turn" on his mum for not telling him? 

not to mention that shes the kind of spiteful to possibly stop me seeing him if i do tell him and despite what happens to me

once the cat is out of the bag and all that there is possibly a big mess to sort, hurt feelings etc so aye..

any advise out there?

on a side note his mother and have done mediation to bring all involved with him together so we can work off the same hym sheet as it were

and i did mention it, it was met with nothing but excuses (the mediatior did nothing to challenge her either just left it like "your going to throw the party when you can" sort of thing)

but thats not happened in around 2 and a half years so its certainly not going to happen anytime soon.

im worried for him.

im worried how hard things are about to get for him in school and when he moves to high school (or secondary whichever it is)

with his lack of social understanding, and regarding his education..  (says his reading is good but messes up words regularly)

seems to struggle to say a full sentence with "flow", his speech can be stuttery and a bit broken and sometimes the sentence just totally breaks down so he has to start it again..

because of his not wonderful behaviour, his mum has restricted his after school social activities

he basically has no friends out side of school

dosent go to other kids houses, no other kids come to his etc

im told that i have to accept him for what he is but i see a world of hurt ahead of him.. and thats what i want to protect him from as best as i can.

i feel that if it goes on and hes not told then god only knows what will become of him.

i think its better for him to know and then be able to get honest help with what he needs to help him progress in life that for him to not know and suffer for a lot of his life when

with him knowing he can get the help he needs..

anyhow, good luck and all the best for 2021 to whomever happens across this post. Slight smile

  • Obviously it's more complicated than to tell him or to not tell him, but I think that it will be such an important part in his development and it'll definitely help him understand himself and how to navigate the world around him. I think that it's really important that he knows. Until I realised I was autistic I struggled to understand what was wrong with me and why I wasn't the same as everyone else. I struggled with depression as a child, and had I known and understood myself, it might have made for an easier childhood. Those are feelings that I wish my child will never have. I can't help with the how to tell your child and how to navigate it with his mother, but I can tell you that it's definitely important to helping him.

  • Hi ,

    Thank you for sharing this with the community. You may like to contact our Autism Helpline team who can provide you with information and advice.

    https://www.autism.org.uk/what-we-do/help-and-support/helpline

    You can call them on 0808 800 4104 (Monday to Friday 10am to 3pm.Please note that the Helpline is experiencing a high volume of calls and it may take a couple of attempts before you get through to speak to an adviser.

    All the best,

    ChloeMod.

  • What I meant, it is better for your son if he knows, any advice and help is better then none and is going to make his life a lot easier

  • I found when I was 38, that my mom new there is something since I was 4, when psychologist at kindergarden labeled me 'difficult child'. She was trying to hide it from everyone, including me, to avoid our whole family being ostracized for having an autistic child. I can understand that, but I wish I new earlier. I thought there is something wrong with me most of my life, as a teenager it was even more difficult, since nobody had an answer to my why. It was like that until I was 36, when my ex's friend, working with disabled people, after seeing me few times mentioned that I might have Aspergers and that I should get myself tested.