OT/functioning report for young adult who's just had his entire PIP removed

I wonder if this is happening to anyone else?  I did an informal pip interview as appointee for my 22YO ASD son in about April or May and they then put it over for a proper assessment in October.  Now suddenly, we get a letter saying his entire PIP is no longer to be provided as he's got through a uni degree and can clearly be independent!   Of course I'm challenging it but I suspect it's a cynical move to save govt money across the board, and am wondering if this has happened to anything else.

For the purposes of the challenge I am thinking of asking at OT to prepare an updated report on his adult functioning and needs - specifically the need to be prompted into action on sleep and self care, supervised when cooking due to risks not noticed, and the need to work out how to make job applications without having a meltdown.  I don't know if you'd call this psychology or OT, but has anyone had any of these done privately?  I won't be waiting for the NHS but equally don't want someone without ASD expertise who will not understand the issues.

Any recommendations would be gladly received.  We're in London so would prefer that area.

Parents
  • Here in Northern Ireland, they have ditched Citizens' Advice Bureaux in most towns. Most benefits applicants here tend to contact Politicians for Welfare support- which makes my blood boil! The DUP and Sinn Fein get their support by filling out benefits forms. The fox is guarding the henhouse.

    I graduated in 2001 - Undergraduate- and 2006 - Postgraduate - but still got a standard daily-living award. Doesn't come near meeting my needs. I have busted so many guts trying to find work; for little reward. Yet those who milk the system can get a new Shogun with the Motobility award.

    Apologies for the rant, but my experience with PIP assessments in Northern Ireland is negative. I only got my award as Advice NI's Benefits' Advisor from Magherafelt appealed.

  • I think this is only going to get worse  with the govt trying to save money where it can.  I've been struck how none of the assessors I have met lately have any understanding of ASD.  I mentioned to this phone one that my son did not go out drinking with mates in pubs and clubs whilst in uni, and the guy laughed with disbelief.  Then when I was discussing the anxiety caused by the overload of bureaucratic admin, he asked why I didn't take my son to the GP for meds for that.  And finally he has interpreted my mention of him using uber to get to distant parts of town because he can't easily figure out the transport systems (you'd have thought that was an obvious sign of need), he's reported that on the rejection form as something my son "opts" to do which shows he doesn't need support!!!! lol.

    Anyway NAS helpline has put me on to its expert database, think I'll approach them before I rely on local govt...

    Thanks all.

Reply
  • I think this is only going to get worse  with the govt trying to save money where it can.  I've been struck how none of the assessors I have met lately have any understanding of ASD.  I mentioned to this phone one that my son did not go out drinking with mates in pubs and clubs whilst in uni, and the guy laughed with disbelief.  Then when I was discussing the anxiety caused by the overload of bureaucratic admin, he asked why I didn't take my son to the GP for meds for that.  And finally he has interpreted my mention of him using uber to get to distant parts of town because he can't easily figure out the transport systems (you'd have thought that was an obvious sign of need), he's reported that on the rejection form as something my son "opts" to do which shows he doesn't need support!!!! lol.

    Anyway NAS helpline has put me on to its expert database, think I'll approach them before I rely on local govt...

    Thanks all.

Children
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