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OT/functioning report for young adult who's just had his entire PIP removed

NAS68947

I wonder if this is happening to anyone else?  I did an informal pip interview as appointee for my 22YO ASD son in about April or May and they then put it over for a proper assessment in October.  Now suddenly, we get a letter saying his entire PIP is no longer to be provided as he's got through a uni degree and can clearly be independent!   Of course I'm challenging it but I suspect it's a cynical move to save govt money across the board, and am wondering if this has happened to anything else.

For the purposes of the challenge I am thinking of asking at OT to prepare an updated report on his adult functioning and needs - specifically the need to be prompted into action on sleep and self care, supervised when cooking due to risks not noticed, and the need to work out how to make job applications without having a meltdown.  I don't know if you'd call this psychology or OT, but has anyone had any of these done privately?  I won't be waiting for the NHS but equally don't want someone without ASD expertise who will not understand the issues.

Any recommendations would be gladly received.  We're in London so would prefer that area.

Parents

  • wow thank you this was so helpful. Yes I know the problem with exploitation at work and pushing you down but at the end of the day with no pip they are going to simply push him to work in the lowest grade of job on pain of losing universal credit. He is then likely to have difficulties with the transport, hours, and as you say mental health problems can arise from treatment at work.  I think it was no accident that the day after we got the letter about pip, the universal credit people have contacted trying to get him to complete some online tasks.  I am about to look those up now.

    Meantime I don't know whether it's wise to use the local authority.  They too are determined to minimise people's needs due to needing to cut down on the provision of their own resources.  It is a bit of a catch 22.  We never had the benefit of a statement or ECHP and just used privately paid independent experts when we wanted to trigger resources.  For example the disabled students allowance that he had at uni.  That was gained with the use of a private ed psych report in the first instance.

    Maybe I will have to try the LA if I can't find a suitable adult independent expert, but I'm not giving up on that just yet!

    All the best with your job search.  These are difficult times. What area do you want to work in?

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  • wow thank you this was so helpful. Yes I know the problem with exploitation at work and pushing you down but at the end of the day with no pip they are going to simply push him to work in the lowest grade of job on pain of losing universal credit. He is then likely to have difficulties with the transport, hours, and as you say mental health problems can arise from treatment at work.  I think it was no accident that the day after we got the letter about pip, the universal credit people have contacted trying to get him to complete some online tasks.  I am about to look those up now.

    Meantime I don't know whether it's wise to use the local authority.  They too are determined to minimise people's needs due to needing to cut down on the provision of their own resources.  It is a bit of a catch 22.  We never had the benefit of a statement or ECHP and just used privately paid independent experts when we wanted to trigger resources.  For example the disabled students allowance that he had at uni.  That was gained with the use of a private ed psych report in the first instance.

    Maybe I will have to try the LA if I can't find a suitable adult independent expert, but I'm not giving up on that just yet!

    All the best with your job search.  These are difficult times. What area do you want to work in?

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