OT/functioning report for young adult who's just had his entire PIP removed

I wonder if this is happening to anyone else?  I did an informal pip interview as appointee for my 22YO ASD son in about April or May and they then put it over for a proper assessment in October.  Now suddenly, we get a letter saying his entire PIP is no longer to be provided as he's got through a uni degree and can clearly be independent!   Of course I'm challenging it but I suspect it's a cynical move to save govt money across the board, and am wondering if this has happened to anything else.

For the purposes of the challenge I am thinking of asking at OT to prepare an updated report on his adult functioning and needs - specifically the need to be prompted into action on sleep and self care, supervised when cooking due to risks not noticed, and the need to work out how to make job applications without having a meltdown.  I don't know if you'd call this psychology or OT, but has anyone had any of these done privately?  I won't be waiting for the NHS but equally don't want someone without ASD expertise who will not understand the issues.

Any recommendations would be gladly received.  We're in London so would prefer that area.

Parents
  • I am in the same postilion as your son, i have had assessment over the phone which i know is going to work against me, the problem isn't always the one who carried out the assessment, its the decision maker at the department of work and pensions lack of understanding of developmental disorders and the negative interpretation of the Diagnostic and Statistical Manual of Mental Disorders & International classification of diseases which seems to be open to interpretation by many and used and evidence that work against individuals with autism, Attention deficit hyperactivity disorder and mental health disorders.

    but saying that your son has managed to complete and attend university which is honestly amazing but it ins't a reasonable justification on denying your son personal independent payments and i would highly recommend you contact you local authority for a needs assessment which may back up your claim to personal independent payments. Doing anything private holds a risk of the local authority denying you access to support and intervention unless it has gone through social services and the National Health Service they may not accept them as evidence of their being a genuine need. But it depends of you local authority, personally my local authority has done this to me and a few other individuals in the same or similar situation to me and we have been stuck in limbo for over three years know. social services should be able to sign post or bring organisations that can help you successfully claim personal independent payments and other support measure to assist you son, it could be as simple as help with filling out job applications and taking them to interviews.

    Just some employment advice as twenty four year old individual with both autism and Attention deficit hyperactivity disorder highly recommend your son avoids employment websites such as indeed, they are not the place to find long term employment and employers where there is high staff turn over is extremely high as these places will perform legal but cruel employment tactics such as unfairly extend trial periods to manage you out. I also recommend you that your son doesn't make the same destructive pattern i have done over the last four years and take first job available for reasons i have suggested because he will be back to square one in a matter of weeks or months with chronic mental health issues as a result. It should be said that any employment opportunity despite his qualification will result in the job center pushing him to low quality work and zero hour contracted work or work environments that are not suitable such as meat production, livestock farming and hospitality which i highly recommend avoiding personally as the men in these professions are dangerously arrogant and it leads to individuals such as me and your son be physically abused at work. It is also important that organisational support such as "access to work" is their from day one and if the employer seems really against them than that a red flag don't let your son take the job. those with the disability confident scheme badge can really mess around individuals and even perform false interviews to keep their badge. Volunteering is another thing i would avoid i have done it so many times with the promise of employment at the end or volunteering with employment schemes and it usually resulting in no real outcome and usually replace you with another volunteer in order to for businesses to avoid paying another wage.

Reply
  • I am in the same postilion as your son, i have had assessment over the phone which i know is going to work against me, the problem isn't always the one who carried out the assessment, its the decision maker at the department of work and pensions lack of understanding of developmental disorders and the negative interpretation of the Diagnostic and Statistical Manual of Mental Disorders & International classification of diseases which seems to be open to interpretation by many and used and evidence that work against individuals with autism, Attention deficit hyperactivity disorder and mental health disorders.

    but saying that your son has managed to complete and attend university which is honestly amazing but it ins't a reasonable justification on denying your son personal independent payments and i would highly recommend you contact you local authority for a needs assessment which may back up your claim to personal independent payments. Doing anything private holds a risk of the local authority denying you access to support and intervention unless it has gone through social services and the National Health Service they may not accept them as evidence of their being a genuine need. But it depends of you local authority, personally my local authority has done this to me and a few other individuals in the same or similar situation to me and we have been stuck in limbo for over three years know. social services should be able to sign post or bring organisations that can help you successfully claim personal independent payments and other support measure to assist you son, it could be as simple as help with filling out job applications and taking them to interviews.

    Just some employment advice as twenty four year old individual with both autism and Attention deficit hyperactivity disorder highly recommend your son avoids employment websites such as indeed, they are not the place to find long term employment and employers where there is high staff turn over is extremely high as these places will perform legal but cruel employment tactics such as unfairly extend trial periods to manage you out. I also recommend you that your son doesn't make the same destructive pattern i have done over the last four years and take first job available for reasons i have suggested because he will be back to square one in a matter of weeks or months with chronic mental health issues as a result. It should be said that any employment opportunity despite his qualification will result in the job center pushing him to low quality work and zero hour contracted work or work environments that are not suitable such as meat production, livestock farming and hospitality which i highly recommend avoiding personally as the men in these professions are dangerously arrogant and it leads to individuals such as me and your son be physically abused at work. It is also important that organisational support such as "access to work" is their from day one and if the employer seems really against them than that a red flag don't let your son take the job. those with the disability confident scheme badge can really mess around individuals and even perform false interviews to keep their badge. Volunteering is another thing i would avoid i have done it so many times with the promise of employment at the end or volunteering with employment schemes and it usually resulting in no real outcome and usually replace you with another volunteer in order to for businesses to avoid paying another wage.

Children
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