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ADOS Test and diagnosis

catherinerose3011

hi, i am fairly new to this site and this is my first post.  i have a 3 1/2 year old who since birth has displayed unusual behaviour/querks.  he intitally was referred to a SaLT and a speech group. whilst at this group they noticed how he behaved.  i reported on his behaviours at home to.  we have been referred to our local CDC for various test including an ADOS.  we have seen a psycologist and she saw how my son behaved(he wouldnt come into the testing room to start with and when he did he hid behind me, pulled out the chair and hid behind that for most of the hour.  he wouldn't give any eye contact to the lady.) 

my dilemma-  the SaLT wants to view him in two different settings to see how he behaves.  the problem is  if someone comes to the house that he is unfamiliar with he will hide under his dinner table or go in his room.  if they come out to view him at his nursery i am concerned that certain staff will not report his behaviour in the same way as they have to me.  e.g one of the teachers can change her story depending on who she is speaking to and contradict herself.(thankfully i record the everything if i needed any proof).

i had suggested the play group he went to for speech therapy but thsi will not be runnning during the assement period.

should i bite the bullet and let them view him at nursery and if the teachers don't report accuratly go back to the profesionals diagnosing with the recorded information or should i avoid the nursery all together.

with regard to the nursery staff they are reporting the same behaviour that we see at home.  e.g there was a puppet show for xmas on at school and he had a meltdown because he didn't want to go.  he has also avoided today having a photo taken(he doesn't always like unless he is happy/on his terms.)

Catherine

  • thanks. i have emailed the salt and explained and given a couple of reports that the good teacher has told us re behaviour.(puppet show wouldnt go to and got very distressed and hid under the table(classic of my son to do so), so much he stayed in his class with two ta's all the other children went to show)

    catherine

  • hi - I'd tell SALT beforehand about the nursery issue + let them know you have proof, if needed.  SALT may see that behaviour for themselves when they go to the nursery.  SALT should have a lot of experience of all sorts of children, parents, teachers + others so they should have their wits about them.  It's obviously difficult if your son hides.  Have you any videos of him?  Just a thought as it could supplement their assessment.  You could ask the playgroup to write something you could give to the SALT team.  I don't think they'd mind that as a supplement to their assessment.  

    Going through the diagnostic process is difficult for everyone, even when that process is welcomed.  Do all that you can but remember to be kind to yourself.