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Diagnosis denied.

ZowieS

Hello.  First post here. 

Ive just recently received a call from the umbrella pathway about My son  (9 years old ).  They said he doesn't meet all the criteria for an autism diagnosis altgoug they acknowledge he does have some complex needs.  Where do we go from here?  We initially denied he had any differences despite his school referring him twice to a peadiatrician.  Third time we decided to be (almost) honest with the struggles both him and us as parents go through and agreed to have him assessed.  My issue is that I don't fully agree with the contents of some of his reports (his school one totally contradicted what the school is telling us he's like at school).  He used to have a specialist autism and aspergers teacher at school who spent months observing him and working with the school to put things in place to help him.  Before working at the school she was a CCN for the umbrella pathway for years and she was convinced he had aspergers and pushed us to seek a diagnosis.   The CCN that visited him in school only spent a morning there. Does anyone know if you can appeal the outcome of the umbrella pathway?  I'm at a loss what to do.  I want something in place before high school as I don't want him branded the naugty kid who cant sit still or doesn't socialise or is rude because his social skills are practically non existent.  Id like to add he has seen ccn, OT and peadiatrician. 

If you've read all of this then well done and thankyou Blush

  • I have heard some people saying the diagnosis didn't help them at all and in some cases causes more problems but I suppose everyones circumstances are different. I went through school, college and university undiagnosed although I struggled socially at times a diagnosis would definitely not have helped me. I was diagnosed later on after getting in legal trouble for offending someone on the internet, initially they refused to assess me and suggested that I pay privately but eventually they did put me through it on the NHS

  • If you've been through the diagnostic process you are entitled to a second opinion but it may well be that you son does not meet the criteria.

    As has been said, that does not mean that there are not other conditions that need investigating. It may be worth asking the school to get him assessed by an educational psychologist as that might help them manage the manifestation in school, regardless of the underlying cause.